View Full Version : new date, I am freaking out!
06-29-2008, 08:20 AM
Well, they were able to schedule Amanda for July 21st for the laser procedure and stent placement in Cinci. I know this is a good thing in that we were hoping to get it done in July so she wouldn't head into school in the fall without a voice but I am just so scared of this whole procedure. I have chatted with Amy (nurse with Dr. Cotton) to make sure they feel Amanda is a "great" candidate for this procedure. I know this is how they repaired vocal cord paralysis for years and that it is a tried and true way to go. But that pesky slight risk of aspiration is making me so nervous, as we cannot reverse this if it doesn't work. I am less scared of it just outright failing and us having to keep the trach in than the aspiration issue. I know her voice is going to be effected and that will be permanent too, but we saw kind of what it would be like when the lateralization stitch was holding the cord where it SHOULD have stayed. Anyway, if anyone has done this lasering/stent procedure and has info to share I would be most appreciative.
Only 3 weeks to go of waking up at 3:23 to pee and then not being able to go back to sleep because my head is spinning.
Amanda's mom, deb.
06-29-2008, 09:57 AM
Just sending :hug: , a wish that you get a full night's sleep and that July 21st is a day with fantastic results. Karen
06-29-2008, 11:14 AM
No experience to offer, just lots of :hug: and prayers that it works this time. Jacob's left cord is paralyzed midline (I think?) and so it would be medialization, not lateralization we are looking at, in terms of surgery. He said this procedure is used to improve voice quality, not breathing b/c it actually narrows the airway.
So, he is still confident that with growth and development, he will get the trach out with no surgery. He said then we will wait and see about voice quality to see if we need the medialization. So much to take in and you've been at this far longer!:confused: :hug:
06-29-2008, 02:26 PM
I think it's great you have a date! I envy you because I feel like we're back in no man's land........sort of limbo.
Best of luck!
My little figther
06-29-2008, 02:54 PM
No experience either but a lot of best wishes for you to have a goodnight sleep and a very succesuful surgery.
06-29-2008, 04:36 PM
We are scheduled for the double stage LTP in Cincy on July 23rd. We will have stent placed, but I am not sure about the laser. We have emailed each other before and my daughter has the vocal cord paralysis as well. They will be opening up the back of her vocal cords to give her an airway, but then hoping to not open them up too much to cause aspiration or not give her a voice. This sounds like something similar that your daughter will be having and believe me I am more nervous about the vocal cords and the aspiration/voice than I am about the stent. There are several people who have had the stent procedure, but it doesn't seem to be as many with the vocal cord issues. It sounds like we will be there at the same time so maybe we can meet each other. Good luck with everything.
06-29-2008, 04:57 PM
Glad you've got a date, but hope you can get a full night's sleep before July 21st! We will be here to support you. Hope it goes well:hug:
06-29-2008, 07:09 PM
Can't say we have experiece with the lazering, but we know all about the stent and the fear of the risk of aspiration. Amy is Tommy's nurse, too. She's always in the OR during Tommy's surgeries. She knows a lot, and she got lots of calls from me about many questions and concerns I had prior to Tommy's surgery. She was very helpful, but she's not a fortune teller either :( Here's a great big hug hoping everything goes well in July, and that you do not worry too much to the point where you can't get any rest:hug: I know...easier said than done!
06-29-2008, 08:09 PM
thanks everyone for the kind words and virtual hugs. I know so many of you have been through something like this, and it doesn't get any easier, but it is so comforting to know that people understand what you are going through and what you are thinking, no matter how crazy it is...how was that for a run on sentence! I am not sure if it will get easier or harder as the time gets closer, but it is great to know I can vent my nervousness here and you will get it. If I say anything to my mom, or sister they get even crazier than I...imagine that.
Amanda's mom, deb.
07-07-2008, 03:47 PM
Hi, we have not had the laser done but my son has a stent in right now from Cinci, (Dr. Cotton) we had a crico tracheal resection Chance is having a hard time swallowing with the stent in but it will go away once the stent comes out this is our second stent in 3 years and the first time swallowing was better as soon as the stent came out, I am not familiar with your procedure but I believe in Dr. Cotton, GOOD LUCK!!!!!
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