View Full Version : Scary experience
04-30-2002, 08:08 PM
I want to inform you all to be aware of material degradation of the trach when it has been in for several months.
Our daughter Line (former 24 weeker) was trached at 3 months to help her get off the vent. She is now close to one year corrected, has a severe BPD but is growing well, tube- feeded and home oxygenated (1/16 LPM or less).
Last weekend I took her to the hospital due to some strange sounds and a certain resistance when suctioning her trach. We felt something was wrong, and we were right ! The part of the trach which is inside her trachea was more than 80% off from the rest of the trach and was on its way to her lungs. We haven't changed her 4.0mm for half a year (on the docs advise). The brand is Shiley. It is now changed to a 3.5mm, also Shiley.
We learned that the trach should be in for 4 months max, no matter what the doc says.
Jan, Lines dad
04-30-2002, 09:57 PM
That does scare me because our doctor said to change the trach every week. I don't know if the frequency of changing is different with different problems. We were told to do this to ward off infections.
05-01-2002, 12:26 PM
We also have always changed Celia's trach every week for 4 years now. Gretchen
05-01-2002, 02:25 PM
We were told to change ours once every 2 weeks, but at least once a month.....your doctor needs some reeducation and make sure he tells other patients to change their ways, okay? you could save someone's life by making sure he passes this on! Thanks, Sue
05-02-2002, 11:42 AM
Hi, Â*This is very scary because where we live our doctors don't believe in changing trach's on a regular basis. Â*My son's who both used shiley trachs only had them changed when the doctors wanted to upsize or down size. Â* We have gone for two years with the same trach in place. Â*Even when they were in for a bronc they did'nt take the trach out, they would look around the trach. Â* Only until recently I had my youngest son in to the doctor and they said that they will do trach changes once a year or after 2 infections. Â*But after reading your post about them falling apart I will be speaking to my doctor about it. Â*
When Grace was first trached (Shiley 3.2 neo) we changed the tube every week. She is now on a Shiley 3.5 neo tube and it gets changed every 4 weeks, but we have been told that we can go up to 6 weeks. She is now 21 months and doesn't make a fuss when we change the tube. This advice was given to us by the top ENT doctor in the UK. Olga
05-02-2002, 02:23 PM
OK, I don't mean to be ignorant, but are we talking about "changing the trach" or getting a brand new trach? We change Alli's trach on a daily basis now because we are practicing letting her go without it, but as far as getting new ones, we've used the same 3 for the entire time she's been trached--oh, no, we did have one that was replaced because it seemed to have a rough spot on the interior. I inspect them carefully after each soaking. We would be out of insurance and penniless if we got new ones each month, they are so costly! I cant imagine going even a week without changing her trach (Shily 3.0) because they do get some build-up in/on them. Deb
05-02-2002, 03:38 PM
I think we are talking about changing the trach. As for getting a new trach, we just throw them away because our insurance pays for 4 a month and I don't see the point in washing them if they are going to pay for it. (BC/BS) I would like to know which area of the country that the doctors are in that are saying to keep them in for a long time. We are in AL. Also, I noticed that they are billing the insurance less for the Bivonas than for the Shileys. We had to switch about 2 months ago and I was told the Bivonas are more expensive. I like the Bivonas better.
05-02-2002, 06:32 PM
We were told to change once a week but on our own are now doing it about every 10-14 days. We will reuse a trach 2 to 3 times & that's it. Insurance should approve at least 2 new trachs a month.
05-03-2002, 06:50 AM
Not changing the trach tube seems incredible to me! Your doctor seems to be against most of the others that recommend changing them! We change our daughters trach every two weeks, Shilley ped 4.0, and we re-use them. We have some trach tubes which we clean and re-use after checking the material seems ok. Each trach tube has months of use.
05-05-2002, 01:19 PM
We were told to change the trach every week to prevent plugs, thought I think the best reason, as a couple of the
replys have alread said, is to reduce infection.
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