View Full Version : Hello. New to trachs and to site
11-28-2007, 05:08 PM
Hi. My name is Claudia. My 7 month old daughter Sienna was trached on 9-27 after a month in the hospital. She was admitted into the hospital in August due to vomiting and diarrhea. She ended up needing a central line and due to dehydration the doctors ended up going through her jugular in her neck. She was intubated for the procedure. She was extubated the following day (12 hours later) and began having breathing issues the following week. She was diagnosed with vocal cord paralysis and subglottic stenosis. She was trached a month after the intubation. We were released from the hospital a month after she was trached. We've been home now for one month. We have nursing 16 hours a day which is great, but it's been very difficult for me to get adjusted to our new life.
I'm looking forward to getting to know all of you and looking for support from others who are in similar situations.
Mom of Sienna (4-22-07)
madelyn and rynns mom
11-28-2007, 05:24 PM
Welcome to the boards!!!!
My little figther
11-28-2007, 05:38 PM
Welcome to the boards
11-28-2007, 06:52 PM
Welcome. I remember the adjusting period. Not fun. But, a year later - SO much better. And it's funny, because I was just thinking about so many things that everyone on this board said would happen - and they were right! This is a wonderful place with wonderful people and I wouldn't be as happy as I am right now if it weren't for this board. I hope you get the support you need, too.
11-28-2007, 07:37 PM
Christy is right...a year later, it is so much easier. My daughter Kate was trached last Nov. She has since been diagnosed with subglottic stenosis, and is awaiting an LTP sometime next year.
Welcome to the board, it's a good place to be!
my son was trached on the same day as Sienna! But at Children's Hospital in Boston. Welcome!
11-28-2007, 09:26 PM
Welcome to the board
I live in Dayton, OH. I am the one with the trach though not my children. I am a patient of Dr Cotton's and have been for a long time.
I'm sorry to hear about your daughter and that you have to join our group. But we are a VERY supportive group of people.
I am glad that you have Cincinnati Children's at your back door. If you didin't already know it you are in the BEST hands with that group of ENT docs.
11-28-2007, 09:48 PM
Hi and welcome. You'll find there are trachs here for a variety of reasons but everyone has some way of helping each other. Karen
11-29-2007, 05:23 AM
Hi Claudia and welcome. I know this is a club you'd rather not be a member of, but these are the most supportive people in the world!:grouphug:
It's good to get support and advice from the people who are living this every day - the parents of these very special children. So come here whenever you need advice, or to vent, or even if you are just in need of a hug (well a cyber hug, that is!)
11-29-2007, 07:01 AM
vBulletin® v3.6.5, Copyright ©2000-2013, Jelsoft Enterprises Ltd.