Babystone06
09-04-2007, 12:30 PM
Hi, I have a 13 month old daughter that was born at 34 weeks. I had low amniotic fluid for all three of my kids (Katelynn 13 months old, Emma 2 1/2 years old, Ethan 3 1/2Years old), which required induction. Katelynn was born with congenital pneumonia and bad lungs. On her third day of life, she was put on ECMO (Heart and lung bypass) for 6 days. She was released from nicu at 30days and required 1/4 of liter of oxygen. From the time she was released till Dec 20th she was in and out of the hospital for bronchitis, eating and respiratory issues. She came home drinking from a bottle but when she was 2 months old she starting throwing up her feeds which led to a food adversion and her needing a g-tube.
On Dec 20th Katelynn was admitted to ICU for respiratory issues that led to her needing a ventilator to breath. In Jan she was given a tracheostomy so she could be more comfortable on a vent.
Katelynn has had ct scans, lung biopsies and this july has even seen a lung transplant team in st. louis so she could go on the waiting list just incase down the road she needs one. She has been in ICU since December 20th (9 months). We have been told she has the last stages of brocopulmonary dysplasia. The doctors believe that she just needs to grow new lung tissue, which is a very slow process. The doctors are expecting her to be in the hospital for another 6 months to a year. The main thing is that they have to get her off the ventilator. They have started the weaning process, she is taken off the vent 2 hours, twice a day now. The problem is that she gets sick every 4 weeks and it sets her back. She currently weighs only 14 pounds. Everytime she gets sick she is taken off her feeds for a few days which causes her to loose weight.
I have been reading your message boards every month and i was wondering if anyone else has similar issues? Does anyone else have a child with BPD?
Babystone06
On Dec 20th Katelynn was admitted to ICU for respiratory issues that led to her needing a ventilator to breath. In Jan she was given a tracheostomy so she could be more comfortable on a vent.
Katelynn has had ct scans, lung biopsies and this july has even seen a lung transplant team in st. louis so she could go on the waiting list just incase down the road she needs one. She has been in ICU since December 20th (9 months). We have been told she has the last stages of brocopulmonary dysplasia. The doctors believe that she just needs to grow new lung tissue, which is a very slow process. The doctors are expecting her to be in the hospital for another 6 months to a year. The main thing is that they have to get her off the ventilator. They have started the weaning process, she is taken off the vent 2 hours, twice a day now. The problem is that she gets sick every 4 weeks and it sets her back. She currently weighs only 14 pounds. Everytime she gets sick she is taken off her feeds for a few days which causes her to loose weight.
I have been reading your message boards every month and i was wondering if anyone else has similar issues? Does anyone else have a child with BPD?
Babystone06