madelyn and rynns mom
02-28-2007, 10:26 PM
I'm Kris, married to Rich, and Mommy of Madelyn and Rynn, 26wk preemie girls born on July 10, 2001 weighing 1lb13 and 1lb15. We live in IL.
Rynn has bronchotracheal malasia 70+% obstruction(mostly resolved), asthma, ROP, DVD(dissociated vertical dysplasia, surgeryX1),chronic constipation, frontal lobe seizure epilepsy.
Madelyn has tracheal malasia, severe subglottic stenosis-near complete obstruction(Trached 10/01 awaiting LTR), PVL, BPD, spastic triplesia cerebral palsy, bilateral club feet, submucousal cleft palate, severe gastroparesis, reflux, G-button, nissen X2, off vent '03, and she finally is making vocal noise!!!
Both are very happy, healthy, spoiled, Princesses, that are truly their mommy and daddy's blessings!!!
Love Kris http://www.tracheostomy.com/iB_html/non-cgi/emoticons/inlove.gif
Rynn has bronchotracheal malasia 70+% obstruction(mostly resolved), asthma, ROP, DVD(dissociated vertical dysplasia, surgeryX1),chronic constipation, frontal lobe seizure epilepsy.
Madelyn has tracheal malasia, severe subglottic stenosis-near complete obstruction(Trached 10/01 awaiting LTR), PVL, BPD, spastic triplesia cerebral palsy, bilateral club feet, submucousal cleft palate, severe gastroparesis, reflux, G-button, nissen X2, off vent '03, and she finally is making vocal noise!!!
Both are very happy, healthy, spoiled, Princesses, that are truly their mommy and daddy's blessings!!!
Love Kris http://www.tracheostomy.com/iB_html/non-cgi/emoticons/inlove.gif