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02-12-2007, 12:29 PM
Hi. My daughter, Jasmin, was born at 27 3/7 weeks gestation by emergency c-section due to pre-eclampsia. She weighed 1 lb 13 oz. She was trached on 2/7/06 at 2 months of age due to subglottic stenosis. We have gone to Boston x 3 for follow up. Her next bronchoscopy is in May 07. We are hopeful that they will be able to begin reconstruction of her airway later this year. I have read a little about the process. She has a Nissen fundoplication, g-tube, chronic lung disease. She continues to have issues with feeding. We are scheduled to have a sleep deprived EEG later this week, due to that she may be having seizures.
02-12-2007, 12:53 PM
Welcome to the boards. My 10 month old daughter is trached, vent dependant, g-tube and also has a seizure disorder.
I hope with Jasmin's eeg coming up this week they can rule that out for your little one. Do they have her on any seizure meds?
02-12-2007, 01:05 PM
welcome to the board, hope everything will work out for you... People hear are very nice... http://www.tracheostomy.com/iB_html/non-cgi/emoticons/upsidedown.gif
02-12-2007, 01:11 PM
Hi and Welcome!
My son has a trach for different reasons, but I'm sure someone here will offer support and answer any questions you have concerning subglottic stenosis.
02-12-2007, 01:16 PM
Jasmin is not on any seizure medications at this point. I'll add a picture of her later, when I figure out how to do it! She is currently 14 lbs 3 oz.
02-12-2007, 01:40 PM
Oh we would love pictures! She's sounds like she's still a little peanut!
02-12-2007, 01:51 PM
Hi and welcome to the board!!!
02-12-2007, 02:00 PM
Welcome to the boards! I am sure you find lots of answers to any question you may have!
02-12-2007, 03:00 PM
Welcome to the boards.
Our son has a trach for different reasons, but we also follow up at Boston.
02-12-2007, 03:48 PM
Hello and welcome, glad you found us.
madelyn and rynns mom
02-12-2007, 04:53 PM
Welcome to the boards!!!!
02-12-2007, 05:52 PM
A big hearty Canadian welcome to you.
02-12-2007, 05:57 PM
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