- Interesting article with video from a local family
- Idiopathic Bilateral Vocal Cord Paralysis?
- more apnea questions
- Medicaid and Private school
- Squeeks and Sounds
- Sleeping Advice
- So what do you think...
- Resources for Transitioning To Oral Feeding?
- update on cillian
- Nursing WWYD (long)
- Pending Bronch
- Medicaid is no longer covering formula???
- Amirah update and a question...
- When should you try to get rid of tracheo tube?
- "manual breath" button on ventilator?
- Sometimes This Life Just Really Sucks!!!
- Stressed waiting for sleep study results
- PMV vs modified Cap
- Lingering URIs after decannulation?
- medicaid lions
- suction catheters
- Ainsley's 7/25/11 Laryngoscopy Results
- Second opinion
- Linnae update--I'm so nervous...
- Preparing Addy for Stoma Closure
- open-heart surgery
- Article: Stridor/Airway Issues In Children with Low Tone
- Night Terrors & Possible Connection to Airway Issues
- Keeping Track of Complex Medical Info
- had our hearing for nursing care
- Genetic results finally in...
- home one day then back for more bleeding
- Harrison's laryngoscopy/bronch results
- Drive or Fly
- trach=gtube 4ever?
- Another PMV Question
- Buying supplies
- aqua PMV vs purple/clear PMV
- Jacob's Bronch
- When?
- HMEs............
- G-Tube Question
- riddle me this.........no seriously
- Essay: The Absence of Normal Frees Us
- Snail’s Paced Progress
- How was your LO's stoma surgically closed?
- Future Children
- Staff
- LTR on Wednesday!
- blenderized diet for PO kids?
- More about feeding issues
- Do you ever feel...
- I am so fed up, what would you do?
- Any Ideas on Progressing to Chewing?
- Bilateral Vocal Cord paralysis
- Out of surgery
- Stoma closure - Waiting?
- how do i deal with this
- Stoma Issue
- The bait and switch
- Life after a Trach with ventilator
- I hate my DME Company
- We're home from Kira's hospital stay...
- Its probably a long shot but.....
- Manual suction pump
- Fire Pit~ Safe or not with a trach?
- Introduction and Unilateral vs Bilateral VP
- How long was your child capped?
- Shutting yourself in..
- Tomorrow is the day
- So the sleep study came back....
- It has been a long time since I last visited..
- Q: Respiratory Infections From Aspiration?
- What is the point??
- Is it possible
- High cal formulas
- Addy's surgery
- open heart #4 tomorrow morning
- blenderized diet made easy??
- Do you feel you overcompensate?
- Another PMV question
- Different Muscles Used in Trach vs Nose/Mouth Breathing?
- Cincinnati Sleep Study?
- met with the surgeon
- Whose been decanned in the "off" months?
- Developmental Toys
- nursing coverage
- Swelling, swelling, swelling... Will it ever go away? What causes it?
- maleeks mom
- Too soon for Decann??
- how do I prepare mentally for a big surgery?
- Kolcraft stroller users- question?!
- New mom with lots of ?s
- Tape issues!
- How do you do it? Work?
- My baby girl
- Can I ask a favor?
- Bivona TTS cuffed trach.
- Getting to comfortable?
- Toddler beds and night feeds
- Rainbow Ties now made of DriWick moisture wicking material
- Should I be worried?!
- How to tell when..
- We have a date!
- Oh Happy Day!
- Capping trial tomorrow night -- worried!
- Decan: Good News/Bad News
- hypoventilation risks
- Transition from worry to peace
- Cillian's first 2 years - hope this works
- Night Oxygen
- Ideally, how much help would you use/do you need?
- Over night sleep/vent study
- Cuffed Trach at Night
- procedures to improve voice
- Should I be worried?! Part 2.
- Voice quality
- Moving stoma?
- What do you clean/rinse your nebulizer cups out with?
- anyone ever used the book "Homemade Blended Formula Handbook"?
- we are a go for oral feeds and other good things
- can the trach ever do more harm than good?
- Keeping the nurse(s)?
- Seeking good EI speech therapist in NY
- Convaid Rodeo Pushchair Changes
- oxygen post decan
- how do you suction a child without a trach?
- Best time for Prevacid?
- Question about non-surgical Decan
- Wheelchair approved bus tie downs not
- naked neck!
- All Done
- Second opinion in Cincinnati=Decann
- How do I seek a 2nd Opinion from Cincinatti or CHOP
- Reconstructive Surgery for Bilateral Vocal Cord Paralysis
- Anyone in Florida? Arnold Palmer Questions...
- Arizona ENT??
- bacteria and more bacteria!
- Generator question
- The State pulled out of our nursing hour reduction apeal!
- green/yellow secretions
- Prevacid Dosage
- How Does Your Trached Child "Eat"?
- Anyone from Switzerland?
- Cricotracheal resection and stenting with an LT-Mold prosthesis
- New nurse orientation
- Night nursing question
- Does your child sleep alone?
- Glottic stenosis
- We have a decan date!!!
- Capped since 9:43 am.
- pulse ox machine needed...any resources anyone?
- good days/bad days
- Cap removed......
- Ideas?
- 3.5 in and capped
- Trach Size for Capping
- Have tonsiels ever gotten in the way of a decann?
- finally home:-)
- apparently it's time to fight with pulmonology
- Just when you think its safe to go back in the water..
- Suctioning on Wheelchair Bus
- long confusing question
- HME with oxygen port
- Second twin was decanned!
- need supplies!!!!
- Tonsillectomy and adenoidectomy
- allergies and gagging?
- Summer Chest Plugging??
- Philippe Monnier
- hmmmm???
- Lost and confused....Lovely combo.....
- Traveling?
- Transitioning to Oral Feeds
- First day of school tomorrow!
- Dealing with decannulation
- New school, new teachers and signing
- help with PMV
- Speech therapy. Need advice
- nebulizer treatments
- Night time knock offs - humidifier
- New nurse for school - anyone else?
- NYS Denied Trachs Again, Help!!
- Keeping the trach for dental work
- Opinions Wanted: Is Decan Worth CPAP?
- Adjusting to 'this' life?
- Jacob Rocks
- Maleek update-finally!!
- Date for Surgery
- Five years ago today
- 3 year old-nonverbal-VERY resistant to suction, gtube feeds etc
- Prevacid ONLY to protect the airway??
- video we made for our resource conference
- trach care routines
- what do you do if food gets in the trach?
- Anyone have an extra 3.5 and 3.0 shiley to spare
- My Baby Girl 2.
- the poops?
- Leaving kids alone
- More humidifier problems
- My husband and I are new to the site!
- When to consider a nurse
- Oxygen tank users
- Getting a Vent and questions about CO2
- Medication list
- measuring C02 levels
- seizure interrupts vacation
- T's Surgery News :(
- Doing a capped night before decan?
- A cold!
- Maximo oxymeter problems
- Just curious....
- trach LO-accessible nursery/daycare in Toronto???
- Anyone had a quick stoma collapse?
- Pulse ox question
- Anyone Using TouchChat HD?
- Masimo not delivered by DME
- Robinul - tell me about your experience
- Cillian's ENT/Pulm Appointment today good news!
- Trachy babes sleeping in own room
- decannulation expectations
- How do you clean the stoma?
- Parent volunteers needed for on-line survey
- naked neck club!!!!!!
- too tight fundo
- Failure to Thrive
- Diversion surgery
- Trach Snot Catching Tip
- Neo to Ped
- Getting used to a Vent
- laryngoplasty experiences??
- failed capping....
- Capping and trach size
- blisters under trach
- feeding tube being pulled out...help!
- Thoughts to share
- Masimo replacement continuos speaker tone
- Cine MRI For OSA?
- Best Time To Travel To Cincinnati
- Definitation of Respiratory Infections
- So the decan was a success.....
- hello again and some thoughts?
- Too much, too much...
- follow up to failed decann...
- Infant sleep positions
- DME Companies in Austin, TX
- Residual-need help
- drinking from a sippy cup, still having oral aversions, and other feeding stuff
- does this make sense? less residual when feed is run faster?
- New Nurse Small World