- How Do You Handle Mealtimes?
- collapse after 4th reconstruction?
- Sooo Sad!
- Spin-off thread - MLB Frequency post decann
- Decannulation is scheduled for August 17
- what's the percentage?
- Ditching the monitor!!!!
- Supplies: How Long?
- decan with o2 needs
- Gripe about pseudomonas!
- how is this even possible??
- How did you reassure yourself . . .
- Decanned!!
- new baby due in a week-really overwhelmed!!
- Wheelchair/pushchair question...
- Supplies - Sodium Chloride
- Nurse overload?
- stoma sucked in
- feed pump-EnteraLite Infinity
- Lung Lavage for BPD (chronic Lung Disease)
- Trachea Escalatory System - gurgle
- Gabriel is back on ECMO!!!!
- g-tube stoma didn't close.
- swimming in a lake w/a G-T ???
- Trach Mask Scare
- For those who used Neonatal trachs
- bloody secretions
- Allergies?
- Asthma? bronchospasms? (sorry long)
- do you get bronch after upsizing??
- Gabriel...UPDATE
- Vent settings when trached
- g-tube questions
- How much is too much-attempting to go trach free
- PMV frustration
- Different types of HMEs
- Suprastomal Collapse Q
- pseudomonas tip
- LTP frustration - what would you do??
- can anybody verify the information?
- Portable concentrators
- Just a few more questions...more about g-tube
- How Well Can You See During a Naso-Endoscopy?
- What Do You Think Of The Crying on This Video?
- Q For Parents of Decanned Kids
- Naked Neck
- Emergency trach box
- HME options
- Jasper's little brother is here!
- Happy and Sad at the same time... school nurse stuff
- GJ Button Question
- Anyone had to use an HME with O2 port while your child was neonatal size?
- Failed Decannulation Poll
- Starting School v. Waiting a Year?
- ML&B tomorrow,
- Count us in
- Mic-Key Extension Med Port Meltdown
- Decannulation Timing
- Vent alarm going off constantly
- Jammed Humidivent
- Mic-Key Button supply
- In PICU-Single Stage LTR Drama
- Own the book?
- Question: Crushing/chewing Medications Not Available in Liquid Form
- Help Please
- Need quick advice...heated moisture trach mask
- Going down a smaller size?
- Surgery & Inept Nurse
- Nervous
- feeds at school
- Tummy Sleeping
- Almost Retrached
- Pulse Ox Poll
- Surgery Success & Difficult Choices
- going crazy trying to get her off tube feeds
- heart pacemaker
- Capping help!!!!!
- odd scar tissue??
- Caps - does Apria carry?
- new baby!!!!!
- we will be in Cinci
- Decanned Today!
- Airway Size Question
- Question About Sleep Apnea & Sleep Study
- Iphone Health Apps
- One week to go!
- When Do You Stop Hoping Growth Solves Airway Problem?
- How will I know its gone?
- Angus update
- Update on Joseph
- Freaking Out re: Pending LTP
- Tobi Meds
- I'm Freakin' A Little, We May Attempt Decannulation
- any news on gabriel?
- how do you know when its time?
- Heavy breathing after LTR (Is this normal?)
- Decannulation dance!!!
- manual suction pump (UK)
- Would appreciate answers ASAP, not emergency though
- question
- Lower Heart Rate During OSA?
- School and germ issues
- frustration with Cinci
- Gabriel might go home with a vent...
- Stomach Contents????
- Pulmonology after decann?
- Does this Tracheitis ever stop? Please tell me it does!
- Prevacid Info
- The trach is out...
- starting school
- talking to the class
- Any word on how things went for Ainsley?
- anyone use Tracheolife Hme with Built In Oxygen Port?
- SIMMS adapter
- Getting ready to bring our daughter home
- Tell me about Malacia please.
- CPT-Chest pounding...what do you do
- Heather is going to Cincinnati Childrens.....
- Eating with a trach
- Clintons Big Day!
- Cinci next week, Sanity in the Hospital?
- Blood!
- how much care do siblings do for trach child?
- Aspiration post-vocal cord lateralization surgery
- Waiting until Spring
- Impedence Probe Question
- Funny sound from PMV
- We are officially released!
- Angus out of surgery
- I know we all have these days..
- Useful tip or urban myth?
- Jacob in the OR today!
- Emotional!
- Trach is gone!
- spitting!!!-losing my mind!!!
- Voice after LTP
- Anyone trach when on high flow cannula?
- new infinity enteralite bags?
- starting sippy cup - H20 everywhere!
- Taking care of *ourselves* in health & mind, then our sick children...
- We're back!
- Natalie finally has her trach!
- DME switching & humidified O2 via canula question
- What does this sound like?
- learning to read?
- Feeling pressured to get home nursing.
- Need a rant!
- Ventilator to Bi-pap - Please help!
- Awaiting Bronch/ Possible Extubation
- Hoping to leave NICU tomorrow
- Breathing on his own!
- So Darn Stubborn!
- Developmental Specialist?
- early intervention could get interesting
- Amirah is home!!!!!!!!!!!!!!!!!
- Angus improving
- Setback
- Nervous - Any CPAP Tips?
- Gem gets trach on Wed - trach tube help please!
- Anger/Jealousy towards "normal" families
- Fireplace w.O2 in house?
- complaints you hear about healthy/typical children...
- Those who have had reconstructive....
- Back in Action
- Dallas Schools District
- My Worst Nightmare..
- Transitioning
- Your child's tracheostomy experience
- Nursing Dilemma
- Nursing hours getting reduced..?
- Jacob Update
- Thoughts on swallowing with an occluded upper airway
- We Got CPAP!
- New Type of Pediatric GI Endoscope
- Michigan Info Needed
- Transitioning to bolus feeds
- moving?
- 2010 flu shot
- HELP!! Please respond with your knowledge
- One Step Forward, One Step Back
- April 2011
- Q for those on nasal O2
- Amirah is in the PICU
- Steroid use to manage bronchitis?
- House cleaning products??
- swallow study, fees advice please
- Retrached
- coloring food/saliva/liquids
- Thanks Everyone
- A friend contacted me
- Honking
- air leaks
- Granuloma and trach changes
- ENT in Melbourne/Sydney
- low tone/air way issues - arytenoid prolapse?
- Amirah is going to rehab
- Very difficult subject... anyone have a DNR
- hope this doesn't set the presendence in due process hearings
- Excessive secretions?
- Stinky feet smell... what is it again??
- Rash? Anyone know what this might be?
- Sick again
- Gabriel is FINALLY coming Home!!!!!
- Gemma getting trach Friday! Thank you for your posts on trach experiences!
- Question about capping
- Pediatric Dentist?
- using trach mask
- Parker's Cincinnati Visit
- Gemma's trach - post op questions!
- I wish I saw this when Addy had her trach
- How do you stop diarrhea?
- Frustration
- Sean Decannulated on 9/11/10
- Nurse Woes-What Would You Do?
- ugly...
- Maryland moms, any information about model waiver?
- Nat Update micro aspirating
- LTR with synthetic material (sorry long)
- Anyone Keeping the Trach For Obstructive Sleep Apnea Only?
- the great Di George debate
- Para on the bus?
- Another School Bus Question
- Gemma update
- Horrible home nursing!!!
- AFOs
- air compressor & humidifier
- second baby healthy-complex feelings???
- in Japan-need second opinion-what to do?
- Gemma update - part 2
- Portable pulse ox & sprinting
- Third Year of Synagis
- Saying goodbye
- How long before taken out?
- pre-thickened milk??
- portable nebulizers
- Home again
- Question for Non-Craniofacial Families
- Trach & G-tube since very little?
- Those with bards
- Alexander said ball!
- Teeth Grinding
- Supraglottic Closure with Epiglottic Flap
- Finally home!
- Vocal Cord Paralysis due to Intubation
- Bathing trached toddlers?
- blood in the trach
- Stinky trach
- voicing
- anybody like to swap
- Quite the blenderized diet find!