- serratia in trach and now blood
- suctioning formula and meds
- Barrel Noses?
- school-holding kids back
- MA residents Catastrophic Illness Fund??
- Developmentally-delayed/disabled-friendly Gifts/Toys List!
- Reducing therapy to save insurance?
- How do we get a back-up g-tube??
- Stroller advice
- Research paper on drilling holes in PMV
- havent had much to say till now
- Temporary Trache - Airway Swelling
- toddler+equipment=cord disaster
- pay for caring for your disabled child!!
- Cough Assist
- I'm losing my job--need SSI help
- New to Posting - question about secretions
- Awaiting surgery in Ohio
- involuntary movement after surgery?
- Signing Woes
- Constant swallowing anyone??
- Trying to make sounds
- anyone worry there ev is not doing what he should
- Nissen hirneated into chest anyone???
- What to do?
- Well, the general consensus is...
- After decannullation?
- 2nd pulmonary hemorrhage-confirmed, airway woes
- skin around stoma??
- Grade 3 Stenosis
- Will we get to go home?
- Different types of HME's
- Just Curious
- Mystery Belly Pain
- New movie in 2010 about trached twins
- Ok...We have a plan I think
- New Finds and Questions
- bummer, we've got it!
- declining respite care ?
- need advice, trach or no trach?
- Trach surgery today!
- Quick update -- "tune up" surgery Friday
- Worried sick!
- Sleeping with no pulse ox
- wheelchair diaper changing in public places
- 7 weeks post decan
- Surgery and other excitement
- Here we go again....
- Trach clinic suggestions?
- TPN at home
- H1N1..what where your first symptoms?
- Pushing us for a G-tube
- Cincinnati again
- Joy doing well.
- What if she won't keep it on?
- Thread that'll make your head spin...& its bizarre replies.
- Any thoughts on a trial decan?
- Reconstructive Surgeries
- Help on what we will need at home!!
- The insurance company may not let her come home for 6-7 hours...
- Fully Plugged While Napping
- Does anyone use helios o2 I think that is how to spell it!
- Dale 240 Blue Users Question...
- NOW I cry. Silly me. Good news.
- our first overnight stays home
- double stroller for infant with trach???
- just wanted to let you all know
- Signing dude sings in sign...cute videos for ASL kids.
- Work on the left arytenoid
- H1N1 2 injection how soon are u protected
- potty training
- We lost our little fighter on friday.. this is so hard
- A clip of the real parents from the movie Extrordinary Measures
- Disappointing news
- probiotics/vitamins/immune boosters for kids on trachs/vents?
- Thank you!
- Oh goody, another diagnosis
- PMV (or similar) and secretions?
- confused about facebook
- 5 days in the hospital
- going for trache consult the 7th
- Surgery consult
- Much Sooner Than Expected
- Precocious puberty?
- New Surgery Plan
- Jasper is 1!!!!!
- going home on a vent
- New diagnosis for G....
- Question about IEP goals/placement for child with multiple disabilities (long)
- Should I take her to the ER?
- Ugh. Sick on Thanksgiving
- He's sick worried!
- Evan Newport
- Is this normal for a sick kid?
- UGGG He is sick again!
- suctioning and blood streaks
- Bronch Scheduled Dec. 8 & No G-tube
- Now this is a CHAIR!
- Great new "thing" for trach care
- Austins update
- sedated mri of the airway
- Bladder Scope 12/3
- Cold & Flu Symptom Chart
- Teeth in Wrong Order????
- soon to be drowning in medical bills
- Reference # for 10mL BD syringe?
- vents for dummies?
- Admitted
- Cleaning - Equipment
- Surgery Scheduled
- What do you use for your mist collar?
- gluten free diet
- trach change
- Back home already... Luke still has his trach
- Advice
- Vent camp website
- some questions-lots of poop
- Always something to worry about
- 1 week with PMV
- update on Keyan
- Pallative Care for Joy?
- JJ is starting to sprint!!!!
- HME with 02 port for pediatric patient
- Surgery Update
- how to, HELP!
- NICU & PTSD Article
- Suction depth on a 3.5 peds shiley ASAP
- Can u tell me what they mean?
- Question about tasting with g-tube & trach
- Swine Vaccine approved for kids in Australia!!
- Trach not going anywhere any time soon
- What to expect with an MRI?
- Feeding backpacks
- H1N1: Autopsy findings shows virus can damage entire airway
- Trach not going anywhere here either
- I think I get bonus points today....
- Home
- Update on Imogen (decannulation!)
- Update on Lexi
- Mitomycin
- IPod/ITouch for Assistive Technology?
- Upper GI?
- Tissue growth in nose
- Troublr breathing....
- clinical pyscologist - not going to potty!
- a PT goal bites the dust
- reconstruction
- pmv and decan questions
- Caffine for breathing issues???
- Don't know what to do?
- Should we Decan???
- Ray of Hope
- Engage in holiday festivities or not?
- robinul or botox
- Help! Excess Trach discharge!
- Do these symptoms sound familiar?
- And that's a good thing☀
- modified PMV?
- Changing G-Tube... Does it hurt?
- Speech?
- recurrent stoma infection/granulomas
- another PMV question
- Pulse Oximeter
- Echo with contrast? Anyone?
- John had his trachi removed on Thursday morning
- update on Jasper
- Trache Change and Bloody Secretions... worried?
- Does desat require hospitalisation?
- Anyone near West Palm Beach, FL?
- Almost Home!!
- Catherine Zeta-Jones had a trach
- So, how many kids are sick right now?
- HELP?! Nursing care is out! Very worried!
- Who handles what?
- An Answer to my question
- New insurance and pre-existing condition?
- Pulm and ENT follow up next week, cardiac early Jan
- christmas in the hospital
- Trach Changing please share
- hello from jasper and santa!
- Ear infections
- Weaning Oxygen
- Albuterol & Feeding Issues
- What happened to pass it along?
- How often changing the trach?
- Psuedomonas Questions
- Rocket or Bullet HMEs
- Plan for Capping help needed
- how many potential decann's in 2010?
- nurs ageny again + vent ?
- what size trach and what size is your child?
- Fly or drive??
- Canadian Parents - Medical Insurance for Travel?
- Decanned speech. Which letters are issues?
- Send Us Your Vibes
- Rooming in and going home!
- Just Checking IN :)
- potty training alarm
- Nutrition freakout
- Anyone have this problem with the pulse-ox?
- HMEs
- tracheal-esophageal fistula????
- Uncontrolled coughing?
- CPAP machine
- sledding?
- MRI Question
- Growth question
- 5 bites!
- Home from Florida
- help asap!
- Fantastic Vent Clinic!
- Am I over reacting?
- Signing
- Has anyone passed up on reconstruction surgery?
- 4th Pediatric Tracheostomy.com Conference
- Need a quick answer : GJ tube users?
- Luke's LTP is scheduled for tomorrow
- suctioning on the way down!
- How to talk to the nurses
- Going to freeze our tails off.....
- Trachs and G Tubes Featured on Photo Magazine
- The cardio appt is finally here!
- .....at a snails pace.
- Update on Luke - advice needed!
- We have a date!
- Can u clean humidifier chambers?
- Ebert on becoming completely tube fed
- update
- kidkart for vent kids?
- FIrst Emergency trach change! Whew! Need answers ASAP
- Bard g tube is leaking
- PMV hole
- It HAS to get easier.....right?
- aqua PMV vs. purple one
- That didn't last long
- ASL site and other stuff
- Dissolvable food
- Being Done With Kids
- zevex feedings how many different ones are there
- Not a great start to the new year!
- Sorry it has been so long!
- Nursing woes - hungry with a g tube?
- mri
- FINALLY... a nissen
- Bronchiectasis Resolved
- Amazing!!!!
- Patches to reduce secretions
- Advise needed for helping child go through surgery
- MRI Results
- Best O2 reading - using a peg versus taped probe