- The R word
- Scheduled for decanulation
- Iliff - Cedric and screening for preschool
- malacia, g-tube, nissen and still getting sick!
- Got me SMILE - picture me on a yacht
- What is involved in closing a G tube stoma?
- what to do before this surgery and what to put off
- Changing trach ties
- For those on medicaid waivers...
- Jasper's biventricular repair surgery
- is this a cold?
- suggestions needed - strange behaviour
- update on JJ
- How to handle nurses that smoke
- Finally gave up.....
- Slacker
- Who Do I Believe?
- Chronic Lung Disease - how long does it last
- Pseudomonas after decannulation???
- Augmentin Duo Clauvanic Acid Supsension - brown teeth
- Lending medical equipment
- acne type break down around mist collar?
- What position do u sleep at night with a tube ?
- Any good word/picture books?
- cold temps and trach
- still a very sick little boy
- Navigating insurance/public aid
- Tricks to get Dale Ped Ducks ties to fit an infant
- Tummyaches?
- She's trying so hard to talk!!
- Stuck In Icu
- Mist collar and Sat's????
- On the surgery list
- what am I suppost to do!
- decan trial
- IEPs, early intervention, etc
- Update on Joseph
- Need feedback on Vocal Cord Paralysis surgery
- What is tracheomalacia??
- Deep suctioning
- Seizures.
- Texas Medicaid
- No more night feeds...
- Got CHAP?
- Worried
- Children's and Infant's Tylenol recall
- Q for those using Elecare
- Medicaid no long covers Xoponex
- capping trial tomorrow...
- Isabelle back on Sildenafil for Secondary Pulmonary Hypertension
- VCD Specific To Crying - What Do You Think of This?
- Blood Tinge In Secretions Normal With Increase Coughing?
- We moved down in size
- Stridor while capped & sleeping
- I wonder how the HME work ?
- Happy Birthday Nathaniel
- yellow contents from g tube
- Sahana update - we've decide to defer decan to Spring '10
- Prayers, Prayers very much needed
- Neotech trach ties?
- Kennedy Krieger Baltimore
- Check out this former trach kid . . .
- No Surgery On Monday
- Can A Hair In the Trach Cause Bleeding?
- She's done her swallowing test!!
- traveling,..packing and HELP!
- Pity party anyone?
- Swine Fluc Vaccine commences in Perth ,Australia next Wednesday!!!
- Have i sin ?
- what a day...
- new trach came in Bivona customized flex tend
- pneumonia
- Pneumonia symptom???
- "Diversion Surgery"
- Are there things to watch for with clothing?
- blueish line on trach
- Trached child playing the trumpet
- Everyone is SICK!
- sx depth-how do you determine?
- Yep ... more surgery, but minor this time ... I hope
- another decan!!
- Joseph is home
- aortapexy questions
- Small steps forward, small steps back
- I'm surprised I'm sane at all!!!!
- Special Trache
- feeding questions
- Help Us Choose Home
- monitoring decannulated kids
- Vacation
- Skeletal after effects due to PDA
- Mama!! Mama!!
- swine flu
- This is long, but I needed to share with someone...
- Suctioning Overnight
- anyone's child not smile?
- I guess it was bound to happen...
- Post-LTP neck scar irritation
- Tamiflu Side Effects
- HME Battle
- long day the drs ... pulmonary...long dumb story
- Recent seizure development
- cuffed trachs
- growth
- argh
- Kids on O2...
- Kaylie chosen for 2010 DS calendar
- any news on Cedric
- What do you do about the tub?
- Does anyone else have this same problem with Nurses?
- I've had my swine flu vaccination!!
- Unbelievable!
- Can you help?
- Anyone declining regular flu vaccine?
- Dr. Oz on Swine Flu- Hypocrite Media Doctor?
- Feeding pump advice
- Post LTR - Voice Returning
- 3% saline/hypertonic saline
- bivona flextend kinking?
- Child Life Specialist-Sibling Education?
- Feeding Textures
- Bonus to having a trach/Vent Clinic
- Signed IEP
- Keith was decannulated yesterday! (but I have a concern....)
- just wondering
- post decannulation behaviour
- Trach obstruction
- Better tracheostomy - can you help?
- aortapexy complete and home
- jaw distraction
- Had to let nurse go
- Covering stoma after decann
- help granulomas Riley Childrens
- Biting HME?
- multiple colds in a row...
- Trachmas!
- Heart Surgery Tomorrow!
- Traveling after we're home?
- Desat episodes
- Ciara's Littlest Heroes Photoshoot
- Supporting our Trached Kids
- Better trach care, looking for YOUR views
- Jasper's out of surgery!!!
- Atlast it came
- Traveling/Camping
- Reflux & Oral Eating Frustrations **vent**
- Advice on passey muir valves(sp?)
- Stupid Bad Day
- Question about Kids On Vents!
- stoma post decan
- Learned more than I wanted about Gtube Stomas Today
- O2 sats and altitude
- Do you have a social worker?
- We got our Passy-Muir valve today!!
- Another word on speaking valves
- need you feed back
- Do you Have Oxygen In the Home?
- H1N1-another poll
- some advice about bvcp please
- new look to the Bivona Trachs
- Ding Dong, The Vent Is Gone!!!!!!!!!
- No longer a naked neck :-(
- Speaking Valve Preference
- Air travel
- Get this!
- trach ties
- Sharing an Article about one of our Children.
- Q for those using (or have used) Farrell Bags
- Please, can we bring the "Off Topic" Board Back?
- Anyone have experience with the new Devilbiss suction machine?
- www.cardiologyshop.com purchase of Nellcor N-65 pulse Ox
- Question about plug
- New Bivona trache
- Describing your child
- Potty Training
- All because he eats I have an extra three hours in my day
- growing
- Pics of the new Bivonas
- Asthma caused by colds...........
- new puritan bennet vent
- My babys sooooo sick!
- trust funds topic..again
- How many here have gotten their special kiddos the H1N1 vaccine?
- Do I need to tell ssi when we decann?
- Letting Lung Compromised Kids Cry
- still waiting on foster placement but now trachi trained
- administering growth hormone
- some funny shirts for us & our kids
- continuous or bolus feeds
- Speaking Valves - Need Product #'s
- too many "experts"
- Anyone keeping kids home??
- at last some good news!!
- Keeping procedure secret from family until after?
- Restless Sleeper
- Silicone Trach Tube
- What sign do you use for block?
- Teachers and School through EI
- Pneumonia and an ear infection...
- Medical Crisis-Digestive Failure
- Human Metapneumovirus (HMPV)
- Tachycardia
- Passing A Virus Back and Forth? Is it possible?
- Multi-dose vials/H1N1 & mercury
- gtube feeders
- Potty Training 2
- Check In here and let us know how your kiddo is doing after their H1N1 vax!!
- Going to school in all this illness
- Interesting-H1N1 and seizures??
- More O2 woes
- H1N1 flu mist
- Mouthing without sound?
- High Blood Gas :-(
- nanny cam?
- Another H1N1 Question - How to Know If You've Had It
- Article on Family Centered Care
- trach cap
- Exposed to Swine Flu
- H1N1 Vaccine Received today.
- cholesterol drugs help with flu???
- formula question
- Boston area TrachCare Meeting
- swine flu
- She undid her trach ties!
- Rash around stoma?
- Reassurance on H1N1 Vaccine from WHO
- H1N1 shot distribution
- Paradoxical Vocal Cord Disorder
- School modification for Halloween-good story
- Good bronch
- G tube "sucked in"
- Reusing Trach's
- New story
- Drooling excessively
- hearing issues may be a blessing in disguise...
- We have H1N1 & What's Up With This "Protocol"?
- Didn't tolerate new trach
- Losing LOTS of teeth. Anyone else?
- stoma reconstruction wed
- PEG fed- ready for oral challenge?
- BPD (chronic lung disease) - how long does it last?
- Order of breathing tx's?? Need quick answer...forgot.
- Is your home health care agency prepared for H1N1????
- coughing, colds, and BPD
- Portex Pediatric trachs recalled
- Who is getting Synagis this year?
- Aspiration and getting trach out
- need feedback
- Ainsley got H1N1
- H1N1 flu mist & multidose shot