- fundo monday
- ciprodex drops qustion
- Another question for decanned parents..
- Abigail is HOME
- Ear drumb popping ear infections-help!
- JJ update and News!!
- kate - how's angus doing?
- What Lynn didn't tell you
- anyone know c02 numbers for children
- pictures of Abby
- limping-trouble doing stairs-any ideas?
- speech/feeding therapy
- Stenotrophomonas ......say what......
- HI Suzanne, checking on Parker
- Nonin Pulsox Err E06
- Refuses Bland Foods
- Thickeners
- Don't sit this one out
- funny smell
- Angus is home
- Question about post-ltp kids
- Possibly Another Naked Neck In July!
- Excuse me??.........
- MLB tomorrow!
- pulse oximeter
- miracle HME
- If you live in NJ......
- Firing a nurse
- 6 weeks...
- Stoma leakage
- Abby funny story
- Considering Cincinnati Voice Clinic. Opinions?
- Getting our bronch
- Anyone live in or around Charolette, NC
- One week to go.......
- We are finally home!
- Results of Katie's MLB
- anyone have info on rem sleep
- We're home. With more questions than answers.
- AAC Devices & IEPs
- how is it feel without HME
- Blood in Trach
- Hayfever Remedies
- sleep study and no rem sleep ?
- hey connie - mind2reality
- Angus update
- Reflux Meds
- Hypoacusia?
- Trouble learning crawl anyone????
- ENT tomorrow
- Decannulation in a 3 1/2 years old boy
- Should I inquire about downsize?
- Frustrations with sooo many hands in the pot
- update to those not on facebook
- Packing List
- St. Joseph's feeding program
- ENT appointment today
- refulx type cough after fundo
- Clonidine users: I have questions.
- Really bummed
- My baby is turning 3 in a few hrs!
- ENT update
- I feel so bad for you
- Still Waiting
- NJ and Cali Families
- No stoma revision needed!
- PMV Questions
- swallowing
- Post decann breathing
- Sleep Study - What to expect?
- Kaiser insurance
- Has anyone capped at home?
- keeping cool with little one, ac ?
- *pic*new gtube crusty what to do
- progress on the therapy front...
- No Decann on Friday, but Maybe Monday
- Sturdy vent cart (picture heavy, sorry)
- Rubbish Weekend
- Latest on Alize
- worry moments when go out
- Questions to ponder over
- Brainwave directed wheelchair
- Low sats, lungs sound "OK"
- In Cincy for ENT visit
- Isabelle probably has Dyspraxia (Arpaxia of speech)
- DanActive Immunity Drink
- When it rains, it pours
- did Nate get decanned ?
- has anyone transition from cobra health insurance
- Wish us Luck!!!!
- How hard is it to get into Cincy?
- Wellsphere & Ainsley's Blog?
- Such a stubborn kid
- Passy Muir Valve
- New Member of the Naked Neck Club
- August, Seriously?
- why does eating have to be so complicated?
- Anyone have experience with T tube?
- Naked Neck Pics of Nate - Link
- Newest Devilbiss suction machine?
- So Frustrating!!!!
- potty training
- JJ Home and a few questions!!
- HME's and vent!
- Gagging while suctioning
- Scars
- Ptsd
- Aerophagia?
- bile breath? even after fundo?
- looking for resources
- Question about Hotels
- our first outing! the zoo! *pic*
- Great Video about young airway patient
- mucus coming out nose
- Luke and Nate
- Trach/vent summer camps
- chiny chins knocking off hme's
- Sahana update ... of pleasant surprises and cautious optimism
- Flying w/ respiratory equipment...
- Anyone Going to Cincinnati
- Sydney got decannulated!!!
- vp shunts
- need ideas on allergy medicine and suctioning
- Anxiety in our children...
- Weird stuff..
- Sorrow and joy
- At 2:20 and 2:22AM tomorrow morning....
- Annoyed W Nurse For No Reason?
- I don't understand
- Laser dilation and downsizing "side-effects"?
- Update on Nate
- going to the beach with a trach
- Chase Update
- Poll-do you allow your trach kid to swim?
- Dr. Peter Manning Cinci Children's
- Nate's Care Page Link
- cookout with friends
- Just had to share this!
- ADMIN: Solicitations
- nonin 7500 is hardly ever right
- do homecare rn's ever work perdiem?
- feeding study tomorrow!!
- Post LTR Voice Quality
- Uh Oh. I think I heard the "C" word.
- Really sick :(
- pulmicort
- double stage LTR
- reverse heart transplant - news article
- Blended diet recipes & ideas anyone?
- I am SO done with it!
- Kara joined the naked neck club today!
- Another naked neck member!!
- Kara Beth's mom..
- Diapers/pull ups
- Torticollis (TOT) Collar
- NUK Brush
- trach change standing up?
- No more naked neck
- IEP gone really BAD!!!
- flextend vs traditional trach?
- Brown smelly drainage on trach drainage sponge?
- medical catalog pics
- I'm so angry with the daycare
- Could use some positive thoughts and prayers
- another useless pulmo appt
- DME Refuses to send Supplies
- What does your medical insurance cover ?
- post decann
- Happy Decanniversary Sienna!
- Eevi and "constant suctions"
- tonsillectomy and maybe more Aug 17!!!
- Sicko
- Crazy YouTube People
- So much fast dry in the tube
- Trach out for surgery
- Franciscan's Hospital for Children
- The big 'D' is in sight
- Update on Leigha
- Sad day for my daughter (Cedric is fine)
- So Excited
- Pneumonia!! Possible admittance Monday
- ADHD-Hyperactivity
- Off to the hospital
- Lithium batteries! how long do they last?
- emily's LTR
- post decan upper respiratory infection...your experiences?
- pediasure..
- Thank You
- Nursing I just have to talk to someone!
- Just Wondering...
- Protective
- portable O2 concentrator?
- It is so fun to throw the swamp cooler
- Ainsley Snoring/Nose Breathing
- medicaid
- Rainbow children's hospital in Ohio
- Yes, I am bragging
- Pain after granuloma removal
- Got a Question
- Zippered Pajamas
- What does your nurse do?
- preschool and nursing
- What do you think?
- The questions begin!
- Great
- pulmicort bronchospasm?
- Hospital
- what age did you trach baby stop sleeping in your room
- Unbelievable receptionists and bad luck!!! ~A good laugh~
- stent removal tomorrow (LTR)
- Too tired to keep doing this some days
- Trach Care
- Hi
- Pneumonia
- I don't understand; How is this going to affect us?
- Moving Backwards - Sorry this is so long
- g-tube wrap things
- We expected it-so why was it so hard to hear??
- The hits....they just keep a comin'
- thick it questions
- home :-)
- voice after surgery
- admitted wed, high c02? smelly trach?
- Tonsil Removal Surgery - Pros/Cons?
- Home but in a crisis
- Thick secretions,& still the smelly trach!
- Tips on Trach Size...
- Staying up with son
- med? cipro and tobramicin drying?
- I told a new trach mom about this group
- Back to the hospital
- website to donate unused supplies
- Planning on having another baby soon...
- Making a move
- And I cried (good news - oral feeding)
- whats up with hi co2?
- stupid cvs pharm
- Developmental Delays
- got our meds :-)
- who knew signing videos were the path to solid foods?
- hypoglycemia
- Herniation of fundoplication wrap
- MOLD found on trach
- Propranolol for shrinking hemangiomas!
- Home
- I am absolutely LIVID! Medicaid HMO taking everything away. Grrrrrrrr!!!!
- Exposed to Strep
- Shower Sheild/Mask
- Medical Records
- Pulmicort and bronchospasms take II