- Tomorrow's the Big Day
- We're off to the ER
- Want more nursing hours
- Is this Odd?
- For Karol, Lynn, and Stephanie
- Of DLBs, LTRs and second opinions ...
- Downsize question
- Is this a seizure?
- Bronch's??? How often after decan?
- Update on Annie: withholding of treatment for cognitive delays
- mom the advocate
- difference between oxygen and air
- Finally home!
- Update and birthday wishes!!
- Jacob did awesome!
- bronchoscopy with lazer
- Stupid Dumb Questions?
- Stupid Comments
- What I have been up to!!!!
- first trach change tomorrow
- a week in Cinci
- Back to Denver,,hopefully they will figure this all out!!
- update on Kadyn--
- My trach buddies are awesome!
- Concise Article about Laryngeal Abnormalities
- Bedtime Battle
- PMV Trial
- I've just about had it!
- Karen - how is Alize?
- swamp cooler
- Jacob Continuing to Do Well
- Heart Rate/autonomic dystonia
- Seizures
- Laughing & Coughing Question
- Peptam Jr.
- need advice
- Viral vs. Bacterial pneumonia
- She Pulled To A STAND!
- What's Up With Kids Eating Crayons?!
- Jacob developed infection
- Sleep Study tonight, wish us luck!!
- Good stuff
- At this point I do not know what to think, or what to feel.
- Update
- Prayers, positive vibes and everything else needed
- Strep
- Busy Keturah
- Indiana Mom's
- Human Metapneumovirus
- Acceptance
- Jacob Update
- Eventuration of Hemi Diaphragm
- Update - very small step ahead
- Almost ALL good news....yipee!
- Another Question
- Going for the vent
- UPDATE on Jordan
- sleep study or NOT
- I need more breathholding brainstorming.
- undiagnosed pain
- Update on JJ!
- Jacob's Update
- update on my other post about amthony being mis diagnosed
- What HME Do you use?
- Cedric new update
- Vancomycin-Resistant Enterococci (VRE), nasty bacteria
- Decannulation update/balloon que
- update
- Starter Signs
- Jacob's MRI
- snoring w/ a cold...
- Digestive Enzimes
- Taking temperature
- oxgen
- Happy Decanniversary!
- We're planning discharge for the 22nd.
- Cedric is doing better
- Lung advice
- Isabelles Stoma Closure Surgery - 20 April
- Big Surgery in Cincinnati this Tuesday!
- Did your kids get DTH through EI?
- Home from Denver...
- G-tube?
- Home Capping Trial Question
- STREP throat....again!
- how much does a trach interfere with ability to taste?
- Sunken Stoma? Supra Stomal Collapse?
- Decannulation Denied
- flex tip trach?
- low sats
- back in the hospital
- Amanda is decannulated!
- Early Intervention Services Eligibilty
- Support needed
- Rant about insensitivity
- Oral feeding & Teeth GRINDING
- what are your thoughts on deep suctioning?
- We are home finally!
- Trach Stoma Pictures
- Video of trach change if anyone is interested.
- Oral Rehydration Salts (electrolytes)
- Anxious about Scope
- The fever is back
- Amanda with new glasses and no trachy!
- Learned something new about clefts
- do any of your kids take Rantadine?
- Capping with the Flextend trach
- Parents with chronic pain...?
- Nursing hours getting cut part 2
- we will get burnt from caring for our son?
- Trach care/infection.
- Psedemonsus ?
- Celia got her AFO's today.
- Sleep Study/Apnea Experts. Help me make sense.
- When and what settings to ask to try a home vent?
- Trach bag is gone =(
- Melisande - you dark horse!!
- pulse-oximeter to give away
- Jacob Readmitted
- Cedric update
- Sometimes we must suffer, before we realize it's all going to be okay.
- Question about reflux....
- We're rooming in tonight!
- Question for parents using ready made formula...
- Ear tube in, tonsils OUT!
- Jacob Update
- Isabelles Stoma Surgery may not go ahead!!!
- My New Gig
- Very import bronch coming up, crossed fingers please!!!!!!
- The long awaited bed.....
- Pic's of Jordan
- would like to share our good news
- Not sure what to do!
- Another cold
- PMV trials
- Seasoned LTP parents--a question
- Torticollis and low muscle tone
- Causes of Yellow Secretions?
- Stubborn Stitches?
- Questions about HMEs
- Accidental downsizing - now what?
- Should we stay or should we go????
- wanted Michele to know we are thinking of them
- Suctioning Blood--Causes?
- Cpap
- Our Pulm appt
- Trach Infection
- update once again
- Update on Leigha
- hole in pmv?
- suction machines?
- PMV (pasemir valve?) Question
- Looking for a Jacob update...
- Cedric's poor little man
- decannulation-sleep study questions
- Unbelievable!
- Thickening Food
- Good news...it's a massive pneumonia! (no, I have NOT lost it...)
- In my update I forgot....
- Capping/decann questions
- Nathan had his surgery yesterday!
- Lithium Ion battery lifetime
- another month of stewing
- Yesterdays pulmo clinic visit
- hi am new here
- Nathan's Naked Neck!!
- New to the site and very excited :)
- Ciara and her chiari
- Constantly amazed
- Oral Sedation
- A story. The system puzzles me sometimes.
- out of the hospital! and ? about suc machine
- Need Input
- Kira update: Formerly Goodnews..pnumonia
- help blood in trach
- Feel Stupid; but now have cool HME's...
- First infection...how often to change the trach?
- Hearing her
- Capping and illness
- Feeding
- Is it better to wait or not to?
- PMV/Cap use while sick & decannulation
- Some Pics- with PMV
- a few questions
- It's finally closed!!
- generator and vent
- At what point do they go to the Dr?
- Swine Influenza
- Feeling Like a Failure
- Should this be a concern?
- Secritions Question
- Doctors for money, what to do ?
- Stethoscope
- Pictures
- Bronch Tomorrow
- Tracheitis
- Post Stoma Closurer surgery - what to watch out for?
- after decannulation surgery...
- Possible Decan for end of June!!!!!!
- Pneumonia and Ear infection,,,again
- sesame place park in Philly Pa
- Cedric out of the PICU
- traveling for a trip, lots of questions
- Lung growth question
- Ainsley Capping - Give Me Your Impressions
- Ainsley's Crying Problem - Any ideas?
- ? for parents of kids with significant seizure disorders
- Anyone in Tucson? (And HI everyone!) Ideas for therapists?
- Plug-in air freshner?
- Addisyn is Home
- A Truly Naked Neck!!
- Kira update/sleep study
- scar revision
- Kate's stoma pics
- LTP tomarrow
- stoma ?
- Pecs-very cool
- Botox
- hanging a feeding pump in hotel
- New Nurse - How Much Training Do You Give?
- Does Anyone Use Multiple DME's?
- Don't know what to do!
- i hate my nursing company
- trach pain?
- Government Stimulus
- Finally, a picture of Nathan and his naked neck!
- Hypoventilation
- Double Stage LTP & the Stent
- Darn. Admitted.
- Nate's funny new trick.... youtube video
- Tasks for Nurses
- anybody know the sign for ball?
- developmental delays-and classes
- Hello to all...
- bi pap vs. cpap?
- Cinci questions
- can a Nissen come "undone"?
- Suction Machine
- My Air Force Situation
- Nurses Week
- At Last!
- Difference between ltv 950 and 1150 & tips for transition to home!
- Our Story-Finally
- Tobi antibiotic
- Help-Nurse With No Trach Experience?
- shelby - resp. distress...
- Purell
- Toddler brain difference linked to autism
- the vent won't stop cycling!
- Our nurse fell asleep. Arg