- The Boyces on NBC 5 local news
- Wow-WARNING-graphic pictures on website
- Kira update/pulm
- Just chillin' at home now
- those who use apnoea monitors...
- Video's of Celia,,
- Need your help.
- In the hospital.
- Jarriell Jr
- CNN article
- Bed
- More recent pic
- FDA News on Reglan
- Hernia/Airway Question
- We've been Decanned!
- sleep study tomorrow, crossed fingers everyone please!!!
- Secretions
- Lots going on. Some good...some not so much....
- what exactly does a "brady test" consist of?
- How Safe?
- Quick update re: Naked Neck Alex
- Frustrated over hospital and trach ties...
- making ventilator portable for toddler
- What do you all do in emergencies?
- After Decann - Breathing?
- wow first night
- For the parents of kids who tried VitalStim
- Scary Diagnosis!!!
- Shikani-French vs. Passy Muir valve
- By the time we get nursing
- Diapers for bigger kids?
- New Discovery!
- too much humidifier?
- Speech Therapy: Group vs. Individual.
- Anyone's children discharged on just CPAP?
- Got home today ... not yesterday.
- Issues & Questions!
- Stoma Closure - naturally or surgically
- AFO Shoes...?
- Global Observations about SS LTP/LTR
- This is what I mean by "Hard to Sedate"
- somatotropin(?)
- (non) Sleep Study tomorrow
- No port
- Ordering Some New Items For Anthony This Month, Maybe You Guys Can Help
- Ever hear of Serum Sickness?
- So.......Ive been starving my child!
- A question about the feeding tube
- ENT or Pulm?
- I feel Awful
- Bloated Tummy...?
- low grade fever on AB's??
- Defective Track tube-can't belive it
- Swimming, Beaches, Water ..
- Pediasure
- Research Project Volenteers Need
- A lot of blood from trach
- Not ready yet
- Whoever said silence was golden didn't know what they were talking about!!
- You go girl!
- Bloated Belly spin-off
- Learning to be a Mom all over again
- JJ update! Issues with reuse of ties solved at hospital
- We have a date!
- Own Room?
- bacterial infections
- Elijah Bleeding Again...plus bonus rant!
- Pictures ... Finally ... Sorry it took me so long
- bronch today
- Any ideas
- Recall on Shiley tubes
- Well, THAT didn't work.....
- how long is yours on hme for day?
- Rude awakening
- Quick Confidence Story
- Very quick-we're in the hospital
- Sick kids....
- Strep throat
- amanda update...
- HMEs at night?
- sometimes more suctioning than others?
- Trache terms, hme, pmv, mist...
- what happens after decann?
- Sleep Study Advice Please
- Stoma closure completed
- Nervous and excited at the same time
- Should I worry?
- Interesting Post Decannulation Week -
- Went to ENT today and walked out kinda sad...
- How could I not notice?!!!
- Cold Question
- Escaping the nonsense
- Discharge Education Meeting - Any advice?
- Celia has pneumonia and ear infections,,,,
- Sweet!
- Feeling bummed
- Neotech trach ties
- Secretions around Mic-Key site
- When the trach comes out?
- Upcoming surgery
- Trached at 3 1/2 years of age.... Anyone Else?
- used needles
- Unused medicines?
- cough?
- Ainsley-Update on Feeding and Hips + MLB tomorrow
- Near Plug & Weird Secretions
- HELP!! Humidifier & dropping O2 sats?
- Sleep study
- putting tea tree oil in bottle?
- Hme?
- Straight CPAP machine vs Ventilator CPAP
- weird sleep study results
- Whewww...what a day/Kira update
- A little Down!
- update on anthony...he is pretty sick... never been this sick before
- Absolute surprise and insanity!!! I think my mind is officially lost.
- The Hope
- Well, this stinks!
- Still here-but getting better?
- sponge hme vs. paper hme
- Let's talk again about Post PICU stress disorder
- I know it's off topic but :)
- Cipro anyone?
- Ainsley Update
- ok going out for a stroll?
- Anthony Is In The Picu
- please for us at this difficult time
- J tube vomiting
- J tube vomiting
- Mickey/Fundo and stomach bug question?
- This may be considered OT but I'm too happy to care
- Slightly confused; better O's on HME???
- Denver Appt.'s
- Service Dog. Cool Story.
- room air!
- Too old for nursing?
- We Survived! (Kinda OT, but not)
- Attention Arthur Fans:
- Nursing Hours?
- Do i have hope ???
- Tonsil Removal - increase O2 levels?
- not so loud suctioning machine?
- Elevated heartrate after vaccines?
- too many nursing hours?
- Does anyone actually use a 2.5 Bivona now or in the past? I have a question.
- ? For LTV 950 Vent
- Cincinnatti???? Should we go there?
- Going back to school
- Pulmonary hypertension news
- Need Advice on Gait Trainers
- Sprinting?
- Another Equipment Question
- Double Stage LTP
- Traveling on plane vent/g-tube
- ? has anyone ever heard of PRN VENT
- Finally found a pediatrician!
- New with a ton of questions...
- Hunter syndrome and Cedric
- Nursing gameplan?
- areas of subglottic stenosis
- HME with Oxygen inlet
- Went to Dr. dont know how I feel
- Met a former trach mom
- Missing brain structure?
- need some advice please
- Need help with discharging supply list...
- Yeah, Natalie crawled
- Regression of Skills?
- Nice stroller to use with vents
- Questions about CP....
- No Gauze?
- jtube feeds, continous & blood in stool
- need ltp info
- How do you keep track of it all?
- We have bad news
- sudden apnea??
- Sleep/ADHD meds?
- Do I change the trach?
- Tummy time... with a trach and vent?
- Alize
- .2 liter
- sad news about zachgram (Carol)
- Headed to Cinci for 4th LTP on Monday
- How Is Harlie?
- elevate HR, cold?
- orange/pinkish dicolored secreations
- Stanford ENT
- has anyone heard anything about Cedric
- Article: Lawyers/Doctors Refuse To Save Baby
- Cedric's update not much to say
- Little Miss Sick!!!
- Prolapsed bowel, any of your kids experienced it!
- riley day or familial dysautonomial syndrome and malacia??
- What is Pulmicort for?
- a bug
- Speaking after trach
- Enfamil AR Formula
- The MRI was cancelled
- speaking valve for vent
- Back,,More ?'s,,no answers,,UGH
- JJ is in surgery
- growth hormone stim test results
- aarghhhhh Neurologist wants to get the seizures under complete control
- Vomit down tube
- where is off topic??
- I am horrified.
- Pulm Appt
- whats it like at home
- Tracheal Resection?
- Update on Miss Maddy!
- Cool Mist Collar
- My daughter raised hell yesterday
- Rehab??
- seizures again
- Still searching for answers.....but good news!
- strollers?
- Pseudonomas
- Double Stage LTP this Tuesday!
- Medication boob at nursery
- Surgery cancelled!!!!!
- JJ update! Where do I even start?
- Baby "Z" back in the hospital
- What to Expect Post LTP Surgery?
- Praying for Alize
- Haltec
- April Fool's Day decannulation scheduled
- Airway size
- Does anyone have an update on Alize?
- Ketogenic Diet????
- Going to ER...Trach Blocked...
- any news about if Cedric got the MRI
- MRI results
- Seasonal Allergies & Trachs
- reconstructive surgery/decann at the same time?
- Interesting Bracket on our Journey
- Check This Out- Ainsley Ate a Chip
- what would you guys do?
- Resistance during trach change?
- Finger Occlusion Trials
- For children receiving SSI
- Fluroscopy
- Speech Therapy??
- Interesting plush toys...
- 2 Days away from the anniversary of decannulation
- Update on Jaden
- Aspiration of Saliva & Airway Swelling?
- Shelby update
- Tribute to Bryant
- Bad grand ma award - yes it has my name on it.
- ANTHONY KEEPS UNHOOKING HIMSELF ( how do we get no no's? )