- subglottic stenosis and surgery
- Anyone with experience/knowledge of an acquired trachealesophageal fistula?
- Saline Bullets Question.
- Risk of MRSA?
- suctioning....
- low blood sugar?
- Past and Current vent parents - will you take my survey?
- Growth Hormone
- Botox/Frozen Vocal Cords/Adult CP
- Anthony Got A Joey Feeding Pump, Who Else Has One?
- Synagis insurance struggle -- need help
- Question for VA Medicaid Recipients.
- Long Term Nasogastric Tube - can it cause gagging, vomiting and reflux?
- weight at decannulation
- Georgia Medicaid
- Mini HME question
- Local News Story:napping nurse
- blood in stool
- Confident Parents with the capabilities to do it on our own!
- Kadyn update...the latest
- Make-a-Wish Story
- ? about passy-muir (sp?)
- Home schooling vs. public school setting
- Bronchoscopy and other stuff.
- We're home!
- The wonderful moments of our children
- "Belly" breathing? Anyone?
- Experience with reflux meds -- thought I'd share
- bolus feeds
- advice needed about meds - pulmicort, atrovent
- Question for those whose kids have been decanned
- Spoke too soon
- Blocked Trach While Driving - But All Was Fine
- Isabelle Doesnt Have Reflux!
- question about preschool in Cinci after LTP
- Ayden update
- 5 weeks post LTP update on Addison:
- footed pJ's
- Quest Re: adovocate/advisors at children's Hospitals
- isabelles followup Bronch - 15 Dec - fingers crossed for decan go ahead!
- and so it goes....very long, so sorry....
- We've hit a wall
- The stent is finally out!!
- daycare
- What can happen with too big a GTube? Bad Mommy story.
- Thank goodness for all of you! A bronch story with a happy ending
- tough day
- Accidental Decann & Dr updates
- GTubes -- I'm reminded of another story
- Help with reflux...so confused (long sorry)
- Nathaniel has been retrached
- Isabelles Bronch today - hooray, clap, cheer, shout, wowee!!!
- getting nervous&scared
- Do you pay for formula?
- Anybody from Cleveland, OH?
- Isabelle Update - Capping Question????
- vidio
- Anyone deal with...
- Gage is getting fitted for AFO's
- when will it end? Croup!?
- Update on Nathaniel
- Two infections---one Nathan...
- Ainsley Has a Ruptured Eardrum- Of Course!
- Trach Change Question
- Results from Luke's swallow study after VitalStim
- Dry or wheezing?
- Question??
- Some advice please?
- No Aspiration with Cap
- Update on Elizabeth
- worthless dr visit
- A morning only a trach parent could appreciate!
- I really need help-behavior books? (long)
- Isabelle is home, decannulated, and a member of the Naked Neck Club!
- Celia is sick-no idea with what though!!
- Great news!!
- New and Very Nervous
- Good news from Cincinnati.
- visual phonics
- Something must be hurting..
- Developing breast-Whole new set of problems.
- constant swallowing......
- Need advice regarding the HME thermovent..
- Update on Makiya!
- The Verdict Is In
- Who all has had a Single Stage LTP?
- Single v. Double Stage LTP?
- Yet more good news!
- Utterly and Completely Ridiculous!!
- Anyone with mobile vent kids have a cart for the vent?
- First 24 hours...
- Good news
- ER on Christmas Eve!!!
- secretions and oxygen questions
- Camping with a trached child?
- So Far So Good
- For those who have had or getting cynagis??
- Merry Christmas,..Natalie's Sick
- Is it too early to get excited?
- How to do manual suctioning?
- ? about family dynamics
- Medicate high WBC count?
- Question and Pics
- G-tube flush water
- Do you take your child out in public often?
- need opionion
- No where to turn? What now?
- breastfeeding?
- Cheyannes' update.
- Doing better then they ever thought possible!
- Capping Observations - sleeping.
- Possible hydrocephalus
- Keeping Nasal Prongs/Cannulas on!!
- Synergist and more on the LTP.
- Hospital -- when you can't be with your kid?
- Salivary gland removal
- ? Dry Weather .... Use of Dehumidifier?
- Videotaping
- Squeaky, whistle sounds after PMV taken off.
- Pediatriac Compleat-desperate!
- osteopenia? skull fractures? in newborns?
- Cincinnati Pre-Op Physical
- Hannah is super sick
- Albuterol and Atrovent nebs
- Chest x-rays
- MRI finally scheduled..
- Sucking after Trach
- Irritation from nasal cannula?
- Trying to be prepared..
- Trachea Collapse At Stoma
- Sleep Study Nightmare
- Austin was hospitalized for pneumonia (LONG)
- Another tale of nursing woes...
- which way to decannulation?
- Worst nightmare...RSV
- Update on Leigha
- should i be worried...
- Pressure area on trach
- Are you kidding me?!?!? Seriously!!!
- speech after decan...
- Isabelles Naked Neck!
- Ordering supplies, how do you do it?
- O2 sat question
- Finally off O2!
- Wow -- GI doc knows his stuff! Got (some) answers.
- Synergis
- Modified Swallow Test
- Hmmmm.....
- Hannah doing MUCH better
- Jacob off 02 as well!
- Time to hope!!
- Suctioning question!
- Erk! Not so good cardiac check up.
- Atrovent Nasal Spray?
- Celia UPDATE
- Swallow Study Update
- measurments of zevex backpack
- Going Home!
- How Often?
- WOO-HOO!! Celia is better and we don't have..
- arranging your nursing care.. how do you have it?
- Jacob's Bronch Booked January 21
- age to suction self?
- Does anybody have a child with a trach just for sleep apnea?
- Update on Jordan (A.K.A Jojo)
- PMV Question
- Pulling on PMV
- Vest system
- Ssi
- GRRR...is anyone else having trouble getting there Thermovents?
- I have not forgotten about you all but....
- Insurance Paying for Baby Formula??
- About to throw a huge fit!! lol
- Tommy's sick
- trach ties
- Fever W/ no other symptoms??
- Spinal issues
- Resourse Boost Breeze
- Boston Area Coffee Hour
- For those Canadians visiting Cincinnati
- No More Fun and Games
- input
- Hey everyone!
- We're Home!
- Alex made DH cry -- in a good way!
- Compressor Question?
- Cedric needs positive thoughts and prayers
- article about vicks vapor rub
- Thank You!
- Headed Out To Ent Later Today
- I Heard the Word Capping
- Anybody homeschool their trach child?
- When do you start with a PMV?
- ASL for trach & mic-key button?
- Circulation problems?
- Trach related vomiting??
- Pediatric Nutritionist
- Smokers?
- UGH, the roller coaster continues!!!!
- Nellcor Handheld Pulse Oximiter & Nonin Oximeter
- we head to cinci on the 22nd
- Zachary in PICU w/ ARDS, very critical rght now...
- Accidental Decann In the Car - And Q
- Quick Question
- Latest on Zachary...
- Eye surgery led to success
- MORE LTP Questions
- Elizabeth is capped
- Finally some pictures
- I am as brilliant as they come
- We're planning to join the naked neck club!
- Emergency bags-request from our NICU
- Missed everyone and perhaps ready to come out of hibernation.
- Zachary's Update 1/18 11 am
- Eric's story
- Fundraisers and benefits...
- need help keeping hme on!!!!!!!
- malacia and lazy eyes?
- My darling Husband
- Am I crazy for not wanting a lot of nursing hours?
- Some more questions
- Subglottic stenosis and Edema Question
- Cody's bronch
- No real questions; just need some hugs
- a tip you might want to try
- God is Good, update on Zachary
- Still able to Breathe.
- I am so MAD!!!
- Decan list 2009
- HME Question
- Feeding pump rate?
- Trach preference?
- Gassy bellys
- I Can Hear Her Cry
- Jacob has bronch tomorrow
- Angus cardio update
- As if I didn't have to drive enough
- Cleaning Trach Ties
- Worn Out
- Oxygen While Flying
- And the plot thickens.....
- In Cincinnati
- Ssi
- trach chains?????????
- Granulation tissue around stoma
- Angus update
- Holy smoly,,Leaving for Denver tomorrow(Thur.)
- Pick-up tomorrow.
- Double Stage LTP for Jacob
- Shelby's EEG scheduled