- Well, 7 years later....
- Who's been decanned in the past year?
- Neotech trach collars ?
- Rough night
- Jordan surgery is wed the 20 of this month.
- Pneumonia Update
- OMG aspiraters,help!!!!
- Fail :(
- More about me and Inês
- School and stuff
- update on us
- Jailbreak!
- Uneasy
- Question for families dealing with lots of secretions
- Tommy's gameplan so far
- LizBeth's Nekkid Neck
- Pseudomonas Question
- Starting ABs
- who has heated humidty? and who has cold air humidity
- pressure sore/skin breakdown
- for those with gtubes
- Anyone else have jaw distraction experience?
- "crappy" Medicaid diapers...do I complain?
- A few answers and none of them any good
- Jordan's BIG day tomarrow!!
- PMV for Myles
- cough and vomit with PMV
- We are HOME!
- We are HOME!
- Capping again
- Add me...
- Update on Jordan.
- Aspirations while capped
- A wonderful IEP
- Update on Tommy's Airway
- Thomas Lee Dereksen
- Services
- Emma is home
- Sebastian in the hosptial
- Question regarding intubation and stenosis
- Do your kids go to a PICU after surgeries?
- TrachCare's Fall Picnic (Massachusetts)
- Breathing rate
- MY son laughing for the first time.
- Gas Problems Yet Again!!
- A Little Ainsley Update
- Going to Cincinnati tomorrow
- A peeing post........
- reglan dosage
- Anyone else getting the new Pulseox probes from Apria?
- PMV-Where Would You Drill The Holes?
- Decann pic, but sedated
- We can't believe it
- Allergies or Cold/Bronchiolitis?
- humidifiers
- Sebastian *still* in the hospital
- Sensor Applicators - Expensive!!!
- Benadryl
- Too smart for his own good!!!
- nissen and trachs?
- Abbrielle Calleen A. Real
- British vs American trach care
- Low muscle tone.
- Services for Tommy
- I hate shunts
- Another Udate on Jordan
- Anyone else having sleeping issues?
- Advice for Cincinnati Childrens Airway Clinic
- Visitors and leaving the house????
- Up Date on Leigha
- I guess it is good news, or not???
- another update
- Sienna's follow-up ML&B
- Lucy's nekkid neck!!
- stoma question (post-decan)
- What do I do?,AHHH!!!!
- How do you cope?
- Intubated after airway reconstruction?
- Oxygen refillers for the home....
- New Jersey Residents: Guide to Special Ed (updated)
- Sebastian at home - woohoo !
- We are home
- Another Close Call
- Our living room is now the baby's bedroom/equipment room...
- Anyone had a fundoplication re-do?
- Another lesson learnt!
- Interesting article, which many on this board could relate to...
- Q: Swallowing With a Nissen
- Trach Size??
- Bathing/showering with a trach
- Just Praying!
- weather
- Cody's LTP surgery is over...
- Good luck Zeke ....
- Article: "Extremely Preemie Babies Prone to Behavior Woes Later On"
- Question about Children's Hospital in Milwaukee
- Who is the best GI surgeon out there?
- No Suctioning...........Crazy!!!!
- Guess where we are??????
- still cooking
- So Scared and Excited!!
- Red Bumps or Nodules...Anyone?
- We didn't fly!!
- Milestones.........
- Granuloma
- Going in the right direction - can not dance yet but...
- Infant with trach tube sleeping questions
- We are home again!
- Salivary gland removal?
- We will try again!
- Myles can Laugh!
- i am sooooo mad
- Thrilled
- So Thrilled I'm Jumping For Joy
- Communication Devices - your experience?
- Is it Tuesday so soon (already?)
- blue on trach?
- Giving away meds?
- kind words from the ENT
- Medicaid and nursing at school
- Dumb questions (book 2)
- Sign Languange
- better news
- "Crappy" diapers update!
- Post-op Alex
- He feels a whole lot better than he looks!
- Mini HME tossing champion!
- Any ideas??
- Searching frantically for a trach bag
- Update on Braden.
- Routine bronch
- Flying...
- Another....Kerry's Pet Peeve!!! Grrrrr!!
- Yea! Negative CF Test!
- We're home ... more later
- Earlier MLB than scheduled
- 4th laser surgery on her upper airway is Monday.
- PMV vs. Modified PMV???
- Coughing, gagging, reflux??
- Where to Begin? One down -- two to go.
- Mickey button out
- Alex photos -- view at your own risk
- School District/Dysphagia therapy
- After the trach is gone...
- Anyone with Pancreatitis knowledge, please read!
- Granuloma (If that is how you spell it)
- Now what?
- Distraction -- Day 1. Alex does fine.
- Date Set
- He eats!
- Friend Needs Advice
- Glimmer of hope
- Bilateral chord palsy
- Respite or other care
- on the acheiva
- Anxiety..........does it happen to anyone else?
- Stoma not Closing
- Apria R#'s for HME
- Decann process
- Newborn Feeding Question
- Getting around
- 4th laser durgery/dilation done, and LTR is next!!!
- Dr. Inge or Dr. Alonso from Cincinnati???
- Cleft palate vs. jaw distraction surgery - which is worse?
- Still no eating.
- Can pain cause rapid heart rate?
- we are in cincy
- Swallow test
- I was wrong
- New "toy" today...
- I really want to throw the O2 sat monitor out the window!!
- Headed to Denver tomorrow(Sun.)
- 2 decan questions
- Christamae... is the pneumonia finally gone??
- We tried again!
- any advise on swallow studies and newly acquired g-tubes?
- Allison surgery on 24th
- where to go for rare endocrine and genetic disorders?
- Fed up with the medical system!
- Mucous plugs... How often do they REALLY happen?
- I had a trach for 6 years... I have a question.
- Wish us luck....
- More Alex pics -- trying something new
- Dust..coughing, sneezing...vomit
- Gagging...new problem, kind of
- Cedric had seizures - positive vibes needed
- Update..........
- Surprise - no cleft palate?!?!?
- Cedric update - surgery tomorrow
- Allison's surgery went well
- All Done Update........
- Pyloroplasty
- Elijah's New Bed!!!
- What a difference!!! caution-graphic pics!!
- Bleeding from trach
- PBS National Geographic special
- how long.....
- Got question about sleep studies
- No more getaway plans
- chemical burn around g-tube stoma?
- To mist or not to mist....
- Update - Interferon - Cedric
- Discouraged
- Airway opening? Is the swelling gone?
- My handicapped parking obsession...advice?
- Getting cold feet for Tommy's second LTP
- Another article "upper"....Happy Friday!
- Vocal chord paralysis question...
- LTP!! I just figured it out!
- Guess where we are AGAIN!!!!
- Ashley update
- Gtube vs GJtube
- Go-Talk
- Questions after being upsized.
- Great news on Bronch
- Update on Braden
- We get to go outside!!!
- Needed " G TUBE info, the good, the bad and the ugly
- Pulse Ox Issues or should I be worried??
- Pulse Ox Machines
- Just My Thoughts on LTP's and other BIG surgeries
- Am I being unrealistic? Need some support for a depressing day.
- So much for second opinions
- Passey Muir Valve
- We're Doing It!
- Ego's
- Angus update.....
- the h word
- CHOP Trach conference approaching
- Pureed Diet? Is this right?
- ADD diagnosis
- a little update
- Change in sleep pattern...
- Understanding, Compassion and Acceptance
- We got our Date for Addison's LTP!
- I'm a little annoyed- what do you think?
- Should I Expect Problem W G-Tube
- V.c.u.g
- Night time tube feedings
- Protein, Fat, Calories.......
- I just wanted to share what I wrote after a frustrating day at the hospital
- Almost home!!!
- Denial of Care for kids with cognitive delays
- Sienna update - Stoma closure scheduled
- Pulmonary Function Test
- Mixing Xopenex and Pulmicort
- I get so frustrated, nearly all meals end in tears, mine and Addisons...
- How often does your child get a chest infection?
- granulation tissue question?
- Strange breathing in our house ....