- Visiting the family farm
- Surgery tomorrow (July 3rd)
- Short prayer needed
- Two Questions - Travel and Work.
- trach change
- nursing coverage
- Upcoming Conference
- On hold
- Wow...yikes...gulp...Yippy.???
- Leigha's bronch
- How much formula?
- Check Kate out...
- Big day tomorrow!
- Surgery Results
- Docs finally agree
- Kate's Decann
- Surgery tomorrow
- Funny tube change
- New diet
- First LTP Follow Up
- Tilted Pelvis?? on Chase
- I'm fuming (insurance rant)
- Surgery went well...no vent!!!
- OMG!!! Finally Home!!!
- Nifty! No more feeding the bed!
- Low heart rate alarm
- Food in HME?
- 7 years ago today................
- shelby's sick
- Christamae... how was surgery?
- info on cipro.....
- Great day!
- Best NEWS Ever!
- Aydens airway looks great!!!!!
- Ok, this just isn't working
- Trach baby in the Pool??
- Home, sweet home
- Refusal to swallow/eat with PMV
- Update
- Oh ... another bronch ... this one is hard
- Addison's 3rd dilation/laser surgery, and she's finally coming home. :)
- Nudey, Nudey, Neck Pics! Finally.
- Tucker's getting a naked neck
- Ouch. Brutal bronch; unhappy Alex.
- G tube stoma
- PMV Question
- Acapella Vibratory PEP Therapy - Anybody use it?
- Head Control
- Nathaniel also has a naked neck
- Bronch Results
- We're Home! Thank Heavens!
- Christopher has a naked neck
- Neck a Mess
- Coughing then vomit
- Home again, home again
- Thank you everybody
- I think I figured out why the bronch was rough
- First accidental decan...
- word for smelly vent tubing HELP!!!!!!!!!!!!!!i need to ask the doc a questio
- Can Mirilax Cause Gas
- Tons of suctioning all night
- Post decann stoma care
- We trialed Tommy off the O2
- Tomorrow is "D" day for Sienna!
- No energy
- LTR tomorrow
- kaylie heading for surgery July 15, 2008 and several other kids maybe decanned
- Tomorrow is "D" day for Bobby!
- Biopsy results and new CT scan scheduled
- do farrell bags work on all feeding pumps?
- Eh. No Surprise. Uneventful scope.
- Kaylies surgery update
- Sienna update
- Pulmonary Hypertension treated with Viagra
- Doing a happy dance
- Ent Results
- Sienna has a nekkid neck!
- Pets, allergies and trach?
- Heel Cord Contracture
- Um does she really need the trach?
- Leigha had surgery today
- Chiari malformation
- Transtracheal Oxygen
- Nebuliser vapour coming out of mouth
- Prayers for Max...
- What to do when the power is out
- Had a big scare
- Horrible cough and lots of secretions
- Our version of swimming with a trach kid...
- Granulation Tissue Around Gtube
- Funny comment
- A bit of a set back......
- Post LTR questions
- Sienna's Naked Neck
- Speech Therapy Ideas - voice???
- The Vomit Is Back
- What effect did a Nissen have on your child?
- Can Granulation Tissue Cause Vomiting and/or Coughing?
- gran tissue surgery
- Reason For Negative Nissen Results?
- Big day Wednesday for Hannah
- One Last Nissen Question
- Naked Neck pic
- Since we're talking about the gut
- Home at last
- Snotty Trach Kid?
- Who is in Cincinnati this weekend and early next week?
- Lucy update
- Scopolamine Patches
- I Want Off This Ride
- Metal Trach Ties
- Nissan
- failed vent - front page of Boston Globe
- Who has allergies?
- Treatment for pseudomonas
- Granulation Tissue/Granuloma Q
- Reflux Question
- Trach Bag? Cincinnatti last week in August
- still in cinci
- HME got stuck
- update
- Isabelle makes noise!!
- question for people *without* nurses
- Boston Globe vent story followup - positive info
- PMV Use - How Much Is Too Much?
- PMV & Screeching!
- good news times four!
- Update...all good news
- For those of you who go to CHOP ENT
- Help - I need to prep my 4 year old for touchy surgery...
- Beach and Trach?
- update on Leigha
- Did I do the right thing? Constipation question
- Will Isabelles voice get stonger??
- we're home!
- Tess - good luck with Abby's surgery!!
- living with the stent...not fun
- Cleft palate question
- Tommy's T & A surgery
- they have agreed
- Bloody secretions with PMV use?
- Trach Chain Supplier
- I learned something new today about secretions
- anthonys constipation update
- PMV Pressure Testing
- Update on Tommy's T&A and my day today
- Abby update.........
- Prednisone - the wonder/nightmare drug
- Calling all Mile High Mommas
- trach infections and colonizations....
- Update on Jasmin
- Got appointment for Angus......
- What Type of Formula Do You Use?
- pulmonary check up tomorrow and NAP study results
- The "P" Word Again!!!
- Update on Abbrielle Calleen
- Sleeved Suction Catheters
- Back to the ER again ... Give me a break!
- Abby is back in the ICU...
- Jaw Distraction -- yes, or no? Rambling, self-serving, self pity.
- EEK! I heard the "D" word today!
- Medical Suppliers
- results from todays pulmo visit!!!! good news!!!
- anyone use disposable vent tubing?
- New study ranking states by family costs of care for special needs children
- The BEST news EVER!!!!
- PMVs Under Pressure on a Tracoe Trach
- EVER HEARD OF Hirschsprung's disease?
- Capping Questions
- Support Groups
- do any of you guys get daipers threw insurance?
- Alone in a car with a trach baby?
- Tommy Update
- Enough of my whining -- We opted for surgery
- More on Jaw Distraction -- some answers and more questions
- Equipment is coming today!
- I've offically kicked Apria to the curb!
- Finally someone being proactive with Tommy
- Support is awesome
- Ding Dong the Stent will be dead...we hope
- GI bug hit us all!
- It is surreal, really.
- CPAP after Decann??
- We Had A Nurse Today!
- Mystery Solved!
- ANyone know of a good to go nebulizer machine
- Pediatricians
- Our trip to GOSH
- About Tobi -- the med, not the dinosaur
- pneumonia now and more ab's
- Other decans this week??
- A'Capping we will go!
- Not too sure about this........???
- update on Cheyanne
- anyone have Medicaid nursing AFTER decan?
- more decann questions--how much monitoring?
- And Two steps back....
- yearly check-ups
- Sick again -- I wish I were kidding
- Something odd happened this morning
- Abby in ICU again.......
- Score one for the Mommy Instinct
- Next steps - worry or not?
- Sick-very sick
- How long after decann do you "give up" supplies?
- Tube feeders.... especially BDs
- Good Luck Dawn & Ayden!!!
- Tommy's Airway Updates
- Trach worries
- we are home..maggie so sorry i didn't see ya
- Genetic testing,34th Surgery for Cedric and discussion about Interferon action plan
- Unvaccinated...dare I ask??
- Back to Cappin'
- Tropic Thunder- What a bummer this is!
- YIPPY... we're free and in the Nekkid Neck club
- Homeopathic treatments
- Cincinnati's Childrens ENT & Neuro Dept Questions
- Please brainstorm with me -- O2 level question
- Huh?
- Huge Plugs!!
- Cricoid split
- ? for the decanned gang or close to decan
- Hello and first request for guidance ...
- I'm shaking all over!!! This is IT!!!!
- Finance problems
- Please Welcome the Newest Member
- Any news about Alex?
- Inês surgery is scheduled
- Nebs
- Anyone tried Neurotin?
- Help Trina with HMEs????
- Tommy's Decannulation Video
- Big Change in plans
- Cedric in surgery and start of Interferon today
- sleep study tonight
- Abby is finally home......
- Can a trach get better and worse at the same time?
- Yo-yo ... yo. Alex update.
- Midface surgery!!!
- need a good double stroller for 2 year old and trach 4mos. old??
- tomorrow is the big D-day!
- No Joy.
- With Happiness brings Sadness
- We are a go for surgery!
- Finally discharged...for real this time!
- Transitioning home - vent transition question
- Tis the season for decanns...
- HME or Trach Mist at night?
- We've got a NEKKID NECK!!!
- Heckuva Week, 2 whammies