- Thank goodness for Little Suckers!
- Gross Trache habit HELP
- Supplies!!! We're moving!
- vent babies
- Who should I bug at Columbus Children's?
- I havent suctioned my baby in 18 days!!
- Need portable nebulizer
- More surgery!
- Spouses/Significant Others attending conference?
- How Do You Communicate?
- recurrent infection
- prevacid
- A quiet horray for Ayden....
- Question about Bivonas
- LizBeth Update and Questions
- Coughing/vocalizing after rigid bronch?
- Who to Call First ?
- Trach veterans update/story thread
- Now THAT'S patient centered care!
- How do you wash your trachs?
- Call me crazy, but i want to know what you guys do when your child has that
- Hip surgery in our future
- Bronch results
- Cipro and feeding tubes ?
- No nursing and still alive
- Update on Sebastian
- Is Your Child on Reflux Meds?
- on the road again
- Reflux meds AFTER a nissen???
- Phone call from the Geneticist
- Acts of Kindness
- Woo-Hoo we got The Vest!!
- Jet Bautista: Life After a Trach
- they think i am mean and bossy
- gas relief?
- help we need answer
- We've created a monster... but it's a good thing.
- How to handle biting
- Teeth Repair, reventilation ???s
- Does Your Child Have a Fundoplication (Nissen)
- first accidental decan
- Question/Waring for those of you with an LTV Ventilator
- Gagging after a nissen?
- eosinophils?
- Alize/Ciara update
- Nursing Question - too much TV
- Conference?!
- Score
- MRI postponed - Cedric is sick
- Exciting News for Dylan!! :)
- Difficult trach change - questions
- Pule Ox Probe Purchasing
- 60 cc syringes
- HELP ME PLEASE!!!Im gonna loose it!
- Jack's Eye Gaze Communication System
- New member
- how do U Know when a bigger GT is needed
- Tube Feeding -How much Turmeric? + Other Antioxidants
- weening off the vent at night?
- Swallow eval.
- Stomach strangulation?!?!?!
- Second Opinion -- Long post
- Two yr old with Trach
- Harlie's 10th Surgery - Jaw Reconstruction!
- Thanks for all the advice...
- POst PICU trauma vs withdrawals
- New Trach Mom
- Trach Supplies
- Jackson decanned : TONS of supplies to offer, unopened, we pay postage
- We have a decann date!
- Urgent Help Needed!
- Explaining procedures to kids
- would like your opinion
- Bye Bye G-TUBE
- Book called "Life with a Trach" by Jaci
- Happy Dancing
- Trial Decan Again this Fall
- Moved: how to change Medicaid fr. GA to FL
- Pictures and a VENT
- Updates on Tommy
- Question about changing GJ tube
- Dumping Syndrome
- Pecs
- Idea for Keeping Suction Catheter Clean?
- Anyone familiar with HMO's?
- Help with Pierre Robin Syndrome
- Back from Cincy--good news and bad news
- Trach Tie Question?
- Follow up Bronch scheduled
- Ann, conference question???
- Odd night time dryness with HME
- What Do You Do With Med Paperwork?
- Feeling sorry I don't know if for me or Cedric
- Procedure update!
- trach "slipped" out?
- Need ideas for portable humidification
- Need ideas for portable humidification
- Vital Stim for Infant with Trach
- We finally have a date...
- Decann Date for Liz
- Anyone's child have a T and A prior to decan?
- have fun everyone!!!
- humidifying question
- Reflux Meds and Digestion
- Follow on Q to Reflux Meds
- We are HOME
- Chicken Little
- Need ideas!
- Going out in public after craniofacial surgery
- HME Help!
- Spinoff Going out in public
- Communicating with the medical team
- PREEMIES: Future life-threatening effects? HELP!
- Medela Suction Machine
- Conference Photos
- Big day tomorrow!
- sleep study/ decan
- Results of Tommy's Bronch
- Decannulated and home
- More Conference Pics
- Trach Stoma Button
- Trach secretions
- Finally home...and he wants to eat!
- Question for Pierre Robin families
- Non-feeding question
- Decannulated
- "Gunk" on the cannula...
- Straighten me out
- Is feeding normally an issue with trach'd kids?
- To use saline??
- Chain Trach Tie
- JOrdan's surgery maybe canceled
- NJ Residents: Dr. Traquina in New Brunswick?
- One issue after another!!HELP!!!
- New! Trachkids.org
- Second Opinion On Malacia
- Colds
- Trouble burping ???
- More Conference pics
- Jordan's surgery is still a go........
- I love asking dumb things
- Eating!!!
- How many scopes are necessary? What is LTP?
- Decann photo
- Spin-off of feeding issues
- so worried
- Jordan's surgery is canceled !!!!
- Medical Records
- Ok a NEW date is set for Jordan.
- Nissen Fundo Not working
- Aspberger's Syndrome
- Ola cursed me! (Kidding) -- 1st accidental decan
- Thank you
- Bye Bye O2!!!
- Good news!!!
- HMEs and oxygen
- we head back to cinci on thursday
- help with Cincinnati
- Can you count to 33??? Cedric can
- Wavering between fact and hope
- Anyone With Obstruction And Using PMV?
- Desat With PMV Trouble?
- Update from vacation.... (might be long)
- We won't be going to Cinci next week...
- Conference Video
- Leaving for Denver Thursday
- Q: PMV Use with Tracoe Trach?
- Suction Catheter With Sleeve- Thank You!
- Found out the reason for the cancellation
- Erthromycin for GERD? Fundo not working
- Feeding Clinic?
- Surprise!
- so many questions about decann!! (LONG)
- How many children have subglotic stenosis
- No Decann for Liz
- Gtube Closure surgery Not well
- Gentamicin
- help: crico trachael resection
- brain storm with me
- Lung Profusion test went well....
- Update on Leigha
- waiting to resched CTR...
- Back from Cinci, again.
- Capping & decannulation
- apria order # HELP
- My Conference photos
- A birthday from he**
- Got a Quesstion
- Flovent Q
- Does this get easier?
- those with trachealmalasia
- how do you know when it is time to sleep at night
- He's making sounds finally!!!!!!!
- HME options & Preferances
- Nebuliser sets - what's your favourite?
- First accidental decan...eh, so what!
- Feeding Pumps
- My HME Good News!
- Ideas on how to get voice
- No Allergies!
- "I'm not Leaking anymore"
- Insurance Questions
- New Decann Date
- How do you change the trach ties?
- they agreed with me
- Immunology appt and an update
- We are home!! A day early even!!
- position for tube change
- Constant swallowing anyone?
- Jordan's fever fineally broke
- how many kids have any type of malacia
- Since the LTP he started eating by mouth!!!!
- I think I'm in love
- Help!!! Am I an overprotective Mom?
- can you ever know all there is to know?
- insurance problems, help
- adacel/whooping cough vaccine
- Incontinence due to Neurological Defects
- Im sick of being scared
- Tummy troubles? Leg cramps?
- would you upsize tube to reduce frequency of infection?
- trach stains....
- No Decann for us today.
- Trouble with sats; No apparent cause
- Maddy's Bronch......
- Trials off the ventilator
- custom trach
- question about tonsillectomy.
- Decannulation whilst still on oxygen??
- Oxygen Requirements After Illness
- new date, I am freaking out!
- No secretions suddenly in the AM -- is this a good thing?
- bronchoscopy and oxygen needs?
- why is your child trached?
- Laryngomalacia - upsizing trach?
- Immunology appt update-probably headed for IVIG
- tube not flush against neck
- Hayfever????
- He did it again!
- c-diff ???what next?
- We have surgery Dates
- Results from Maddy's Bronch....
- Any Reason For More Sounds Post Feeding?
- Developmental Delays
- Article about my son
- Neurogenic Bladder
- Teeth
- undiagonosed syndromes.
- question about dme's?
- Interesting Article - Babies with Trachs