- Free supplies
- My Appointmenet today
- Results of Tommy's Heart Cath
- Thank you from the bottom of my heart
- Helping a neighbor
- New update on Leigha
- Going home
- Tommy Update
- Sick of being 'unique'
- Male nurses
- at last...a sleep study
- Brooklyn Update
- Anybody Use Miralax? We Have Some Extra Bottles
- Baby-sitting issues
- new here
- puree foods through g-tube
- pulmicort recall
- Good news re Clario suction machine
- Back from Cinci
- Male nurse ..update
- Vitamins for tube fed kids?
- Leaky Bard!
- Do I hear Decann wk again......
- Trached and vomiting
- Help! ASAP! Equipment failure!
- pureed diet recipe
- Been sleeping at the hospital....
- ENT today
- Farrell Bags
- Jordan decanned herself again.
- Voice Clinic in Cinci- Details
- Who else tried the pureed gtube recipes this weekend???
- anyone had gastric emptying scan...?
- Please pray for Braden!!
- HELP!My Daughter is getting trached this week.
- ENT Appointment Tomorrow
- One year ago today......
- Swallow Study results.....AND she's sick!
- Up date on Jordan
- ENT Appointment Update
- 24/7 nursing - does it exist?
- Update on Braden
- Home Sweet Home!
- Botox Phenol tomorrow
- help
- New pediatric tracheostomy care program
- ?How far do you travel for specialists
- OK it's getting old she did it again...
- INDIANAPOLIS area families??
- Freaking Out About Faith!
- another update on Leigha
- Congenital Lobar Emphysema - Harlie Update
- How Do You Feel About This?
- ISO HME's Please look.
- Are they ever *really* out of the woods after decan?
- Calling all inventors? Humidification devices help
- We got a speaking valve!
- Guess it was Sebastian's turn....
- anyone ever had a stoma revision?
- Angus update
- DeVilbiss pressure wrong?
- GJ tube broke
- Ideas about swelling of vocal cords?
- Apnea monitor supplies
- Chronic Lung Disease Questions
- Pediatric Tracheostomies
- Zevex pump bags (500mL)
- Medela Clario Suction
- What a waste of ******* time!!!!
- Nursing for older kids with trachs
- Need advice----venting
- What is normal?
- Parker Update - in Cinci
- Orthopedic Shoes, Anyone??
- caffeine anyone?
- Anyone have info on Cape Town, South Africa
- School Responsiblities regarding "needs"
- Scared to death about School
- Can you just use the HME or NOSE?
- Vent weaning?
- Guess What I Just Got In The Mail!!!
- Surpise Surprise! Bleeding again!
- Kaylies having a sleep study on sat july14
- Oh what fun....
- pierre-robin & tonselectomy anyone?
- up date on Leigha
- trach supplies
- carbon dioxide levels? for toddlers?
- Questions for those who don't have your kids set up in the main living area.
- carbon dioxide level question 3?
- to all who have had sleep studies?
- Questions about reconstruction surgery and pictures
- looking for the best test for cpo2
- How long does it take for the hole to close?
- Malcolm's LTP/R scheduled for Aug. 6th
- Routine Bronchoscopy
- what is a clario suction?
- Any help for increased electric bill?
- g-j tube changed - YUCKY
- Neotech Trach Ties
- fundiplication
- Too many emotions!!
- Never ending suctioning
- Looking for different HME for 15 month old
- paralyzed vocal cords
- CT/MRI results
- cuffed trachs
- Pictures of Cheyanne
- signs of not expelling carbon dioxide
- State by State Utility Disconnect Policies
- to all who have kids that have been decan?
- Question about Mic-Key Buttons
- sleeping arrangements
- To many cooks (or drs) in the kitchen
- Tracheomalacia questions...
- From CNN: Tips for fighting insurance.
- Anyone use an HME at night?
- got good news on leigha
- Prayers, thoughts and any insights please
- Jacob decanned and CRIED!!!
- So if a child is plugged
- Home Finally!!!!
- Kate decanned and cried today too!
- another caffeine question
- Giggle juice Rocks!
- I need some help
- Need advice
- Subglottic Stenosis
- Question re: Mickey button sizes
- leaving for cincy
- How long do you keep them onthe pain meds?
- Malacia and Asthma
- Need some support...was in a wreck today
- Nebs every 4 hrs for Amos (how Long)?
- CTR vs. LTP
- Tooth Discolouration???
- Kate decanned herself...again
- More g-tube issues
- Positive Thoughts for Ainsley's Surgery Tomorrow
- Traveling/Altitude change ?'s
- Aaron's Surgery
- Thoughts?
- Mouth Breathing??
- Singing
- How old when decannulated?
- Any ideas what this means?...
- I got my trach bag....
- sweating buckets? Dangerous?
- Advice?
- Chicago Sun Times Article
- humidity compressor/O2 sats
- Free supplies
- So We Got A Diagnosis Today
- does anyone have a pco2 monitor at home
- Update on Jasmin
- Update on Fintan
- Dr. Cotton's email address anyone?
- Elidel anyone?
- seizure help please
- Anyone have an FM system for hearing aids?
- Needing prayers for Kara's surgery on Tuesday.
- My seizure help ?
- Too much stress!!!
- back from cincy
- Those with medicaid in Illinois
- LTP surgery in MA
- Super Duper Nurse Angst
- want to donate equipment
- Naked Neck Club
- our ambulance ride
- pulmonologist or ORL doc to change order?
- Contact Lenses For Toddlers Anyone??
- No Decan For Kara Yet
- Question about "riding" the ventilator
- Photo of Braden's spine correction
- Cedric surgery is tomorrow morning
- ENT appointment today
- New Community for Parents of Disabled Children
- We had quite the night last night.
- wish us luck for tomorrow, sleep results in
- We might be going on a plane
- Appt today
- reusing trachs
- the results are in no decan for Kaylie, lots of
- UPdate on Kara
- Cedric, against all odds
- need some advice about tonsils
- apnea episodes how many aloud within a hour
- Anyone seeing a psych/therpist/SW to help deal?
- Marriages/relationships ( LONG vent/rant )
- medela clario pump
- Tommy's ENT Appointment Was Today
- HME info
- What should a stranger say?
- Bi pap questions.
- I am a wreck
- PMV question
- Mitochondrial disease
- Anthony Threw Up Need Advice
- Bronch today
- Pray for Malcom
- UHC...after 8 years....they're switching insurance at work!!!
- When did your child get a PMV?
- I want my HME!
- Posey Small Trach Ties To Give Away
- Colonisation
- the clario has arrived...
- Nathan is trying to talk!
- Where in the World Are We?
- ZACH is HOME
- feeling bummed for no particular reason
- transition from GJ tube to G tube
- gaining mobility while on vent 24/7
- Reflux?
- Will post major ortho surgery
- Update on Ainsley's Surgery
- Mythbuster: Decan Before Age 2?
- Is there life on a vent?
- NEW decan poll - revote if you already did the first poll!
- Suctioning way less ??
- Cedric's Grand Ma crazy idea - I need to pick your brains
- DME company problem Help Asap please
- ENT visit
- Charity started in memory of a preemie
- Jordan is home
- I am frustrated beyond belief... PV
- Awesome Reflux Website
- Help-hiccups
- Ventilator Induced Lung Injury
- Discriminated against b/c of $$
- We have a diagnosis
- Jacob's Hearing Aid
- A link that a nurse Friend sent me
- stoma closure - what looks normal?
- Personal opinion, question
- New, scarred, and hopeful
- Child with Pierre Robin successfully decan by Dr. Cotton's team
- Anyone have a Joey enteral feeding pump?
- Harlie's having lung surgery tomorrow
- Can't sleep.... O.R. bound yet again ...
- Breathing over the trach?????
- Wish us luck
- blood coming out of trach
- Malcom(from Ga) is a nose breather
- Sebastian's bronching ....
- Secretions - What are they?
- Tips for Minimizing Secretions?
- Needing Advice ASAP PLEASE
- C.diff and nasty poo???????
- Kara is going to be admitted