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babyhugger
08-17-2005, 04:18 PM
Hi Guys,

Tristan had his PH Probe Mon. 8/15 and the pulmo. clinic nurse called today with the results. Â*His GERD is NOT worsening! Â*YEAH! Â*His meds are taking care of it.

For the other news, we still don't know if a Nissen/fundo is in his future. Â*If his GERD had been worse, then we would have really gone ahead with the surgery at that point. Â*It still is an option, just because he continues to vomit/aspirate. Â*His GI wants to wait a while and see if it slows down on it's own.

On the way home from the hospital yesterday, just as I was pulling in the driveway to our home, Tristan's pulse ox went off with a low sat reading. Â*I was like "What the heck?". Â*When I looked at him, he had pulled out his trach and blood was coming from his stoma! Â*I ran him in the house and started trying to put in a new trach. Â*His stoma was so tight, it took about 5 attempts at different angles to finally get it in (that's the stuff nightmares are made of). Â*I immediately called the ENT and he saw us right away. Â*He wants to revise the trach and put in a new size and brand (Bivona I believe he said). Â*Anyway, it is still bloody around the site today, but secretions are clear at this point.

There is my saga for this week (I hope that will be our only near miss).

Blessings,

Dawna

Caryn
08-17-2005, 04:52 PM
That is quite a scare! While reading, I could just imagine how I would panic. I was very lucky that we never had anything like that happen.

sandra
08-17-2005, 04:53 PM
Nightmare indeed! That is so scary. I'm glad Tristan is alright. Good news on the reflux!

We use bivona trachs and I really like them. They can be customized which is nice if you need something special.

Whitney
08-17-2005, 05:30 PM
Congrats on the exciting news. We had the Bovina custom trach before we switched to Shileys and we loved it. We did have problems with getting the trach in when he decannulated accidently and I know its very scary.

http://www.tracheostomy.com/iB_html/non-cgi/emoticons/wow.gif I know my heart was racing all night after that!

Again, great news and I hope you can avoid any surgeries!

Whitney

T-bone
08-18-2005, 11:32 AM
Holy cr--!!!!! It sounds like you handled the whole accidental decan very, very well. My heart was in my throat just reading that. Yikes. I am so happy that everything ended well. Seeing that is scarry enough and then when the trach would not go back in. Double yikes.
Job well done. I might need to have a drink on your behalf.
Teresa