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View Full Version : Quick update re: Naked Neck Alex

KJKK8437
03-02-2009, 11:29 AM
I can hardly wait to get back on the Boards and read what has happened to everyone. I see such interesting posts, but I just can't right now...

We are still struggling with detox, but not the way you might think. The PICU was full to capacity, so we got pushed to the respiratory floor about 36 hours sooner then ideal. As a result, we lost the ability to wean the methadone and atavan at a rapid pace. They don't do WAT scores on the floor, and as a result, Alex has been sleeping round the clock since Tuesday. He has even skipped doses of the meth (2x) with no consequences. We FINALLY seem to have gotten through to the doctors that this is not right, nor is it necessary, but it has been a long, frustrating struggle. Sadly, I think he did all his detox the hard way in the PICU, with 36 hours of terrible shakes.

The follow up-follow up bronch is today. If all is well, the plan is to discharge us tonight. (Snow or no snow.)

I have lots of questions, lots of pics, and some funny videos to share. I miss you guys and love you all.

Oh ... and I found out that as of last summer, I seem to OWN all of Alex's equipment. Huh. That is both an opportunity and a bit of a disappointment. No one will come to take it away! But still, we will see to it that it goes to good use.
KJKK8437
03-02-2009, 11:31 AM
PS -- I don't think any of this has sunk in yet. I suspect when we get home and put the equipment away, and stop fighting for Alex's detox regime, we will begin to realize what has happened. Then, I think, the tears of joy will come. So far ... not so much. I am really surprised at myself.
alizesmom
03-02-2009, 11:38 AM
I hope your next post is from home, happy tears and all. Karen
Niff
03-02-2009, 11:45 AM
I'm so happy for you. :) I hope the bronch goes well and Alex can stay in the nekkid neck club for life!
faywrayy
03-02-2009, 12:20 PM
So so SO happy for you. Can't wait for pics and a detailed post. And as for the "let down" ----- I told you you would suprise yourself. It's when you have the freedom on the outside (no nurse, no equipment and the ability to put your child to bed without a bunch of tubes and wires) THAT'S when things really seem to turn around!!!

xoxoxoxoxoxox
debvec
03-02-2009, 12:55 PM
I have shed happy tears for you all...it is so exciting and amazing. I am so happy for you all. can't wait for more.
Alex's mom
03-02-2009, 12:58 PM
I can't wait to see some pics! Good luck with the bronch today.
kirafaesmom
03-02-2009, 01:47 PM
It's so good to hear from you Karin! I don't know how you are able to put together a post let alone have time to absorb all the changes! Praying for an uneventful transition home SOON! (and with NO snow!)
saywhatyouwill
03-02-2009, 01:53 PM
wow!
when it does sink in it will feel just so amazing :-)
TommysDad
03-02-2009, 02:12 PM
WOW! This is all so amazing! I'm sure it will take some getting used to, but once it sinks in and you find your new lifestyle, you'll look back on all of this and ask yourselves, "How did we ever get through it all?!?" The stories you will be able to tell everyone as Alex get older! AMAZING!!! ABSOLUTELY AMAZING! CONGRATULATIONS ALL OF YOU!!!

:not_worthy: :D Maggie
Kaylie
03-02-2009, 02:16 PM
best of luck with the bronch I hope you all get home soon. please be careful on the roads if u come home.. cant wait to see that naked neck...................... i know u cant wait to get home....
JWorthington
03-02-2009, 02:51 PM
It won't seem real until you get home. Can't wait for pics!:D

Julie x
Hope
03-02-2009, 03:45 PM
Hey Karin - Just hoping y'all are home in your own beds tonight and loving your boy. Exit the roller coaster this way, please ....

:hug:

Hope
Gretchen(Celia's mom)
03-02-2009, 04:43 PM
YEAH YEAH YEAH!! Well I have had the happy tears for ya!! LOL you can have them later when you get home!! I can not even express how happy I am for you guys!!
JacobKaden
03-02-2009, 06:59 PM
So, so happy for you Karin! I am sure it will start to sink in once you are home, which I am hoping is soon!:hug: :hug:
Baby1107
03-02-2009, 10:59 PM
Don't worry I have shed the tears for you Karin. I think Angela is right, when you can kiss all that stuff goodbye and go to the beach with sand, and go swimming in the pool this summer it will hit you. :)
elijah'smom
03-03-2009, 01:43 AM
I hope the bronch went well and you got home. Can't wait to see the pics:) .
babybear
03-03-2009, 08:24 AM
I'm so happy for you! I hope the follw-up bronch goes well and you can get home tonight!!!!!
Hope
03-03-2009, 02:45 PM
Just wondering if y'all made it home and how things are going?
Hope
cariaad
03-03-2009, 03:20 PM
WOONDERING WHERE YOU ARE NOW..? Cant wait for photos and your expression of how it feels. I know the most awesome thing for us the first time was rocking her to sleep and taking her into bed and not having to make a second trip for the suction machine etc! Keep us posted! Deb
PetNL
03-03-2009, 03:32 PM
Again, so delighted to hear your news. I can only imagine how the last few days you could have only dreamed off even months ago. So much has happened for you i guess the realisation of it all will happen when the space is there to allow it......... at home:hug: Hope Bronch went well and Alex is ready to go to his own wee bed xox